Episode 77

full
Published on:

19th Nov 2024

Hope for the Holidays: The Gift of Extra Time Post Myocardial Bridging Surgery

Hey Heart Friends. I sit down with previous guest, Jeff Holden, to explore the profound changes heart surgery brings into one's life. Jeff recaps his own battle against myocardial bridging, recounting the gratitude he feels every day. From open-heart surgery to life-altering dreams, Jeff unpacks the layers of his experiences, revealing how overcoming a near-fatal condition has fueled his passion for advocacy and storytelling. Curious about the life-changing dream Jeff had after surgery? Tune in to understand why this dream has become the cornerstone of his new mission and find out how he’s making a difference in the field of cardiology. Plus, discover the significance of a simple bracelet—a daily reminder to appreciate life’s small blessings.

Listen to Jeff's original episode here. You can find his podcast, My Imperfect Heart, anywhere you get your podcasts.

Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.

If you just want to support the show as a one-time gift (thank you), go here.

**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

How to connect with Boots

Email: Boots@theheartchamberpodcast.com

Instagram: @openheartsurgerywithboots or @boots.knighton

LinkedIn: linkedin.com/in/boots-knighton

Boots Knighton

If you enjoyed this episode, take a minute and share it with someone you know who will find value in it as well. You can share directly from this platform or send them to:

Open Heart Surgery with Boots

Transcript
Speaker:

Getting to spend another day on the planet, to have my feet hit the ground

Speaker:

when I roll out of bed, to take that breath in the morning and open

Speaker:

my eyes. And I will say, over time, it's still

Speaker:

easy to forget the reality of what's

Speaker:

been done for us, any of us that have had the surgery,

Speaker:

that we get to spend this extra time, hopefully doing

Speaker:

something engaging with a greater degree of

Speaker:

appreciation, with a more grateful

Speaker:

nature. Hello. Boots Knighton here.

Speaker:

Welcome back to another episode of Open Heart

Speaker:

Surgery with Boots. Today is a

Speaker:

very special episode for me. I

Speaker:

am excited to bring you Jeff Holden

Speaker:

for our third installment of Hope for the Holidays.

Speaker:

But let me tell you a little bit about Jeff. So

Speaker:

Jeff and I have met through a Facebook

Speaker:

group for myocardial bridging patients,

Speaker:

and Jeff was the very first

Speaker:

interview I did for this podcast.

Speaker:

Bless this man. Up, down, left, and right for

Speaker:

putting up with me in my first ever

Speaker:

interview. And I'm like, my face is hurting because I'm

Speaker:

smiling so big. Because, first of all, Jeff, you said

Speaker:

yes to this, like, person who had never podcasted a day

Speaker:

in Her Light. You own your own studio, and we've

Speaker:

become friends. Like, I'm always so excited

Speaker:

just to, like, talk to you. You were so generous with

Speaker:

your time then, and you're generous with your time now.

Speaker:

And the other thing I absolutely love about you is how you're just like, I

Speaker:

am a Chicago native. I have never met anyone from

Speaker:

Chicago who was so proud to be from Chicago,

Speaker:

and I have got to go visit that city just because you are so proud

Speaker:

of it. So, of course, you live in California now,

Speaker:

and you were absolutely thriving and kicking butt

Speaker:

at making myocardial bridging

Speaker:

more well known, more talked about in the field

Speaker:

of cardiology. There's so much for us to unpack with

Speaker:

your very positive update for Hope for the Holidays. But

Speaker:

mostly, thank you for being my fellow heart buddy. Well, first of all,

Speaker:

Boots, the. The first episode was a blast to do because it's fun to see

Speaker:

somebody else get into podcasting and have a passion for it and have a

Speaker:

passion for what the mission of the podcast is as

Speaker:

well. So congratulations on your program and all

Speaker:

that you're doing for people with open heart surgery, because I think they really do

Speaker:

appreciate it. There's so much misinformation out there and disinformation

Speaker:

and confusion when we get into, you know, any of these things concerning our

Speaker:

hearts. So congratulations there. And, yes, it is a pleasure to

Speaker:

say you are a friend. We've met at some of the Other podcast

Speaker:

meetups. And it's so wonderful to be able

Speaker:

to actually see and touch and get in the environment

Speaker:

of somebody when you only have a virtual experience

Speaker:

for the introduction. So congratulations on all of that.

Speaker:

Thank you. Thank you. Let me give you a high level view of

Speaker:

how we connected. So obviously we're both

Speaker:

myocardial bridge patients. We've both had our surgery. We

Speaker:

met on the Facebook group, and in my case, a little bit different. I'm a

Speaker:

little bit after you. I'm about two and a half years, a little more than

Speaker:

two and a half years out from my surgery. Similar situation. We go through the

Speaker:

misdiagnosis, the challenges of getting diagnosed. I'm a little bit

Speaker:

older. My whole situation happened a little bit faster. I had that

Speaker:

heart attack that caused all these uncertainties of what was going on

Speaker:

and how it could have happened when I was in great shape at the time.

Speaker:

And it eventually led me to Stanford, where I actually had the privilege

Speaker:

of meeting Dr. Trimmel. I didn't meet Dr. Schnicker at first. I

Speaker:

met her after my surgery because I came in the back door through the emergency

Speaker:

room and met with Dr. Boyd. Boyd performed my surgery

Speaker:

a little bit different than most in that I also had a bypass, a

Speaker:

Lima bypass. So I've got a myocardial bridge on

Speaker:

roofing as well as the Lima bypass. And as a

Speaker:

result of that, there was an epiphany for me in the

Speaker:

process of the surgery, post surgery recovery,

Speaker:

where I had quite the dream. And I

Speaker:

will say the dream was a life changing dream

Speaker:

because even to this day, it's still as vivid as it was the

Speaker:

day that I had it, the day that I woke up after experiencing it and

Speaker:

sharing it with my wife and just a tearful reunion when she came in the

Speaker:

room. But it made me realize that a lot of different things

Speaker:

that maybe I'd just been thinking about and they all came out and manifested themselves

Speaker:

through this dream after the surgery. Maybe it was the drugs, maybe it was lack

Speaker:

of sleep, I don't know. But whatever it is, I am so grateful for

Speaker:

it. And you've heard me say many times on our program that

Speaker:

these things don't happen to us, they happen for us. And as long as

Speaker:

we keep the perspective of the fact that these

Speaker:

things, almost everything happens for us. So, you know, we

Speaker:

look at it and if we try to find the reasons and the positivity out

Speaker:

of it, how we're going to cope, what we're going to do, what the adjustments

Speaker:

are as a result of the situation, Whatever that

Speaker:

situation be, in this case, for us, it was the myocardial bridge. For others, it's

Speaker:

open heart surgery, it's bypass, it's all sorts of heart

Speaker:

conditions that can be remedied through surgery.

Speaker:

That there's a gratefulness that comes out of it.

Speaker:

And certainly in my case, you know, that gratitude at 65

Speaker:

years old, having lived a life and a career and a variety

Speaker:

of experiences really took a turn

Speaker:

to where there was an absolute necessity to do a better job of giving

Speaker:

back and making sure that the people who have this condition

Speaker:

have a better understanding of it. And as I was exiting the hospital on

Speaker:

my release, my discharge day, Dr. Boyd came in. It

Speaker:

was a Saturday. And I remember looking at him and saying, hey, I need you

Speaker:

to do me a favor. I do podcasts for a living. I tell stories. I

Speaker:

help people tell stories. I'm a communicator. I connect people.

Speaker:

If this didn't happen this way

Speaker:

to me, somebody who does podcasts and communicates and shares

Speaker:

information, what else am I meant to do? I mean,

Speaker:

that's about as clear an indication, at least in my mind, that this

Speaker:

program is a necessity in the fabric of my life and my profession,

Speaker:

what I'm going to do going forward. And I said, I need, Dr. Boyd, I

Speaker:

need for you to be one of my first guests because

Speaker:

you performed the surgery that so many people are uncertain about.

Speaker:

They. They call it controversial, yet so many of us are

Speaker:

benefited as a result of the surgery. And he said, absolutely. So

Speaker:

as I was walking out of that room, I knew right away, this is going

Speaker:

to be, you know, one of the things that we do. And again, as a

Speaker:

result of the dream, which is a result of the surgery, which is a result

Speaker:

of the condition, we do an incredible amount of

Speaker:

programming for nonprofit organizations. And

Speaker:

the nonprofit podcast network is another one of our

Speaker:

vertical productions that we do from the studio. All born out

Speaker:

of that dream. And that dream was, it was an

Speaker:

epiphany to say, you need to do some things differently, and you need to really

Speaker:

get your arms around what you do. And, you know, to say, I'm a

Speaker:

grateful patient is really an under way, an

Speaker:

underestimate of just the experience of

Speaker:

getting to spend another day on the planet. To have, you know, my feet hit

Speaker:

the ground when I roll out of bed, to take that breath in the morning

Speaker:

and open my eyes, and I will say, you know, over time, it's

Speaker:

still easy to forget the reality of what's

Speaker:

been done for us. Any of us that have had the surgery

Speaker:

that, you know, we get to spend this extra time, hopefully doing

Speaker:

something engaging with a greater degree of

Speaker:

appreciation, with a more grateful

Speaker:

nature. And because we're looking at a month of

Speaker:

gratitude, November. I appreciate what you're doing and

Speaker:

the ability to say thank you and to

Speaker:

recognize the people who have made our lives better as a

Speaker:

result on any given day and to be able to share that with

Speaker:

somebody, you know, whether it's, you know, a hello or hi, how you

Speaker:

doing? With sincerity, you know, not just the, you know, the flippant,

Speaker:

everything's good. Because we know that gratitude

Speaker:

expressed with sincerity is a visceral reaction.

Speaker:

It changes the. It literally changes the synapsis in the

Speaker:

brain as a positive. And they do

Speaker:

establish a memory. So the more you're grateful, the more you

Speaker:

express the gratitude, the more likely you will continue to express it because the

Speaker:

brain says, hey, this is a good thing. Let's keep doing it. And we had

Speaker:

the good fortune of having a gratitude

Speaker:

psychologist on the program last year right around the holiday.

Speaker:

And we'll repurpose it again this year. Dr. Peggy

Speaker:

Delong. And who would think there'd be a gratitude

Speaker:

psychologist out there? But that is what she specializes in, right? I

Speaker:

want her job. Right. That's

Speaker:

cool. It really is. And she does a lot of public speaking,

Speaker:

and it's obviously all on the nature of gratitude. Ironically, she

Speaker:

had a heart condition scare. So she could relate

Speaker:

to some degree to what we go through with our

Speaker:

situation. Although she didn't need surgery, it was easily remedied.

Speaker:

But I recall and I wear to this day. I don't know if

Speaker:

you can see this. There's a black bracelet here and there's a little

Speaker:

silver bead on it. She sent it to me after the program. She does these

Speaker:

as her outlet therapy of sorts. She makes

Speaker:

bracelets. This is the gratitude bracelet. And the little silver bead

Speaker:

on there is a reminder to be grateful for something.

Speaker:

Every time you look at that bracelet. Every time I look at that bracelet and

Speaker:

I see that little piece of silver, it's like, hey, dope, don't. It's not that

Speaker:

bad a day. Everything's good. You're still here. Be grateful for something. What is

Speaker:

it? And it just reminds me to recognize,

Speaker:

you know, the people, the places, the passions that I get to perform

Speaker:

and things I get to do in my life that make

Speaker:

it wonderful, you know, every. Every single day.

Speaker:

So from, from that perspective, what a

Speaker:

wonderful thing to put a series together of people saying thank you

Speaker:

who have experienced, you know, a life threatening or a life challenging

Speaker:

situation to where they can step back. And I know people

Speaker:

say step back, smell the roses, do things differently. I certainly do.

Speaker:

You know, if I'm out doing my exercise, which in my case is

Speaker:

cycling, I would always blow by everything because I'm trying to just

Speaker:

pace a little bit better or perform a little bit better today. I'll

Speaker:

stop if I see something really cool. I'll take a picture of it, you know,

Speaker:

and post it on that particular ride or send it to somebody and say, hey,

Speaker:

check out what I saw on the trail today. Or, you know, this

Speaker:

experience. Whereas, God, that never would have happened

Speaker:

before. So many nuggets in there that I have question

Speaker:

marks about. And thank you for sharing all of that. My

Speaker:

biggest question that I continue to

Speaker:

ponder is I know I could not be

Speaker:

where I'm at now with my gratitude

Speaker:

and my love for life without my heart

Speaker:

surgery. Like I am just such an experiential

Speaker:

learner. I could not have learned the perspective I

Speaker:

have now through a book or a place of worship. Do

Speaker:

you think what you and I have been gifted is

Speaker:

attainable through teaching? I

Speaker:

mean, it just seems like we are

Speaker:

the lucky ones. Yeah, no,

Speaker:

I don't think you can teach it. I think you have to experience it.

Speaker:

We can profess it. I have a great deal of faith. I certainly

Speaker:

do believe in a higher power. And I thank God every night

Speaker:

and often during the day that I get to do what I get to do

Speaker:

as a result of what could have been really either debilitating

Speaker:

or death. I don't think it's something

Speaker:

we can share and express without the experience.

Speaker:

I think people can get close, they can understand

Speaker:

and comprehend, but the experience of it changes

Speaker:

that dynamic. It's not to say somebody else can't be grateful and express

Speaker:

gratitude by any means. Absolutely, yes you can.

Speaker:

But when there's that significant

Speaker:

threat of loss of significant

Speaker:

loss and possibly loss of life, life of loss of any ability to

Speaker:

do anything any longer, and loss to

Speaker:

the community you serve, loss to the people around you. And when you start to

Speaker:

really think that through, which I didn't prior to,

Speaker:

but post, I certainly do. And I'm more grateful

Speaker:

for them than ever that I'm still here to get to see them,

Speaker:

you know, whether it's, you know, our kids or our grandkids, you know, certainly

Speaker:

my spouse, the people I work with every

Speaker:

day is, is just that reminder when you do see them

Speaker:

that you've been given this gift, don't

Speaker:

squander it and make the most of it. Do what you can with

Speaker:

it. In spite of all the other stuff that you're going to deal with, in

Speaker:

spite of all the other crap that's going to come up, because that's reality of

Speaker:

just living. But to recognize nothing

Speaker:

is as important as the ability to

Speaker:

live a life fulfilled, you know, a grateful life,

Speaker:

and one that you're giving back to somebody. To say

Speaker:

that there was a benefit of that relationship, that

Speaker:

association, even if it's just that contact with somebody

Speaker:

in a casual sense. Yeah, yeah. I've

Speaker:

been saying lately, I feel like the world needs heart surgery.

Speaker:

You know, we. We had the benefit of a meetup

Speaker:

and there were about 12 of us. 12 of us, which

Speaker:

I can't. Maybe the biggest gathering of anybody with

Speaker:

myocardial bridges together in one space. Not all

Speaker:

surgically unroofed, but certainly the two that were in the room that

Speaker:

weren't, were still very appreciative of where they were in

Speaker:

their journey. And that's significant because they

Speaker:

understood they are either moving down the path to recovery

Speaker:

and surgery, or they've gotten to a point in their

Speaker:

process where what they're doing is working.

Speaker:

And hopefully for them, it will continue.

Speaker:

You know, we know typically it deteriorates over

Speaker:

time. Yeah. But again, depending on the severity.

Speaker:

But that, that appreciation. And this was mostly couples, so they were

Speaker:

with their significant others or spouses. And it was really wonderful

Speaker:

to see the gratitude both ways, you know, from the

Speaker:

spouse to the patient, the patient to the spouse, knowing

Speaker:

everybody saying that there's no way I could do this without my significant

Speaker:

other. And that in itself is an

Speaker:

expression of gratitude. And you are doing

Speaker:

incredible things with your studio. You had mentioned the

Speaker:

nonprofit network. But then tell us about Imperfect

Speaker:

Heart Podcast. Yeah, Imperfect Heart Podcast,

Speaker:

available wherever you seek. Your podcast out is a

Speaker:

program that was specifically designed for people with myocardial bridges.

Speaker:

And what we do is we try to alternate the episodes.

Speaker:

Patient, possibly on a journey, still there. They're not

Speaker:

on roof. They haven't had their surgery yet. Or patients

Speaker:

who have had their surgery, could be six months, could be a year out, could

Speaker:

be five years out. As one of the longest term people that we've

Speaker:

interviewed, and it's the expression of all that

Speaker:

activity. What did it take? What were their conditions? What were the symptoms they

Speaker:

were experiencing? How did they get to where they got. Did they have insurance issues?

Speaker:

So it covers a gamut of their experience. Because the thing that we

Speaker:

can't stress enough, and I'm sure you see it with everybody you speak with, there

Speaker:

are no two alike. There are no two symptomatic.

Speaker:

Experiences that are alike, similar, but not the same. And there are no

Speaker:

two unroofing procedures that are like everybody's bridge is different. It's shorter,

Speaker:

it's longer, it's deeper, it's obfuscated by something.

Speaker:

So the nature of those stories, each one is

Speaker:

unique to that individual. And each of the surgeons does the

Speaker:

surgery a little bit differently. So we don't quite yet

Speaker:

have, nor maybe we never will, a specific

Speaker:

protocol that exactly do it this way. And I hope we get to

Speaker:

a point where we know that there is an absolute best practice. But this is

Speaker:

still new, and these unroofing procedures are still

Speaker:

very fresh in the surgical

Speaker:

world, having been done maybe 10, 12 years. I think Dr.

Speaker:

Boyd probably still is the leader in terms of the numbers he's done. And it's

Speaker:

only about 250 over the course of 12 years. So that's wild.

Speaker:

Take your surgeon who's probably done 5, 6, 8, 10, maybe,

Speaker:

you know, the robotic guys who have done the most, they've done maybe 30,

Speaker:

40, 50. You know, we're not talking about thousands. No,

Speaker:

you know, it's an aggregation of. And so the purpose of the program is

Speaker:

really to give people that spirit of hope, to know you're not

Speaker:

alone, that there are a lot of us out there who

Speaker:

are experiencing the same thing, and to learn about proper

Speaker:

procedure and diagnostics and what to look for, what to

Speaker:

expect, what to get your head around in

Speaker:

terms of what you're experiencing. And also, our

Speaker:

objective is to find a doctor in each state that is

Speaker:

performing the surgery. Now, we have some states where we have multiples, others

Speaker:

where we have none, but we're working toward

Speaker:

that goal of one in each state so that whomever is in wherever they are

Speaker:

in the United States, we've got a place for you to go. We've got a

Speaker:

gentleman that just finished his surgery about three weeks ago. To the best of

Speaker:

our knowledge, the place he had to go. It was their first

Speaker:

unroofing procedure, and he used all the tools from

Speaker:

the podcast and the Facebook group to share with them. He's an

Speaker:

engineer, so he was very specific in terms of what needs to be done. And

Speaker:

they said, we think we can do this. They obviously do surgeries, and they do

Speaker:

bypass surgeries, and they do aortic surgeries. And our surgery isn't the

Speaker:

most complex. It's just novel, and

Speaker:

so far, so good. Incredible. Look at all the good work you're

Speaker:

doing. We have a surgeon in Sedona. We've got some really

Speaker:

Cool episodes coming up from, you know, people that have traveled abroad.

Speaker:

And we have a gentleman that he's from Perth, Australia,

Speaker:

and he had his surgery done in all places

Speaker:

Pakistan, because he had no money and he needed to go someplace.

Speaker:

And there was a doctor in Pakistan that said, we can do it. And

Speaker:

so he went there and got it done. And he's in great

Speaker:

shape right now. So amazing. I mean, I just have to

Speaker:

clap that. And this is the beauty of podcasting,

Speaker:

because we get to hear about all this and

Speaker:

our media isn't necessarily covering all that. And

Speaker:

this is the good news. This is. This is the good in the

Speaker:

world. This is the miracles in the world. And this is

Speaker:

the beauty of living in the year 2024,

Speaker:

going into 2025, when we can find each other

Speaker:

across oceans and help each other. You know, I have to

Speaker:

share. We just. One of the women who were at the

Speaker:

meetup has a daughter who's a nurse who is a

Speaker:

contributing editor to a digital

Speaker:

magazine called Next Avenue, that's a PBS

Speaker:

production, Public Broadcasting System production. And because of her

Speaker:

mom's condition, she wanted to do an article on it, and they said yes,

Speaker:

and it just got published. And they mentioned

Speaker:

the podcast in there because it's a great resource.

Speaker:

So I'm excited to say that people are starting to

Speaker:

recognize the value of the communication of

Speaker:

this often dismissed condition, you know, often

Speaker:

misdiagnosed. And there is a big clinical

Speaker:

trial being done, as you're aware, out of Yale. Dr.

Speaker:

Sameet Shah is performing that clinical trial with 500

Speaker:

cohorts, and he's got the majority now of

Speaker:

the major clinics, Stanford, Cleveland Clinic,

Speaker:

Mayo, UPMC in Pennsylvania,

Speaker:

Houston. And they're all involved on this in

Speaker:

attempting to set protocol for proper diagnosis

Speaker:

not only of myocardial bridges, but any of the conditions that present with

Speaker:

no apparent occlusion, no blockage.

Speaker:

And he's, he's getting there, you know, so that's a step in the right direction

Speaker:

if we can get to where people are saying, oh, yeah, this is a condition.

Speaker:

We need to address this. How do we properly diagnose?

Speaker:

Great. And they're using the Stanford protocol for testing, which is the

Speaker:

provocative test that is definitive. And then of course,

Speaker:

CT angiograms for anybody that has this condition is the noninvasive

Speaker:

test that is the gold standard without having to go into a

Speaker:

catheterization. So we're making progress. It's all too

Speaker:

slow. I firmly believe people are dying from the condition,

Speaker:

and it presents itself as just a coronary blockage. He Died, the

Speaker:

widowmaker was blocked. She died, the widowmaker was blocked. But I think if they

Speaker:

were to do autopsies on each of these people, that they would

Speaker:

find that probably what it is in the population. One in four of

Speaker:

them had a myocardial bridge. And okay, say I'm

Speaker:

wrong. Call it 10%. There's 700,000 people a year that die

Speaker:

from, you know, heart disease. That's 70,000 people.

Speaker:

And let's say I'm wrong there and it's, it's 1%. That's

Speaker:

7,000 people. So what can we do to

Speaker:

improve that proper diagnostic and make the

Speaker:

medical community more aware to look for this condition when somebody

Speaker:

presents with something that doesn't make sense? Yeah. I mean,

Speaker:

again, we're the lucky ones. Over and over. I mean,

Speaker:

I'm just awestruck at. Even though

Speaker:

the road has been really hard at times, incredibly

Speaker:

hard, I'm still awestruck at how

Speaker:

fortunate I feel on a daily basis. And I know you do too.

Speaker:

Yeah. And I'm one of the blessed few who post

Speaker:

surgery. Nothing. I've been fine. And that's what I wanted to

Speaker:

ask you about is like, how, how did, how are you thriving?

Speaker:

What is the secret sauce? I think back to

Speaker:

the earlier part of the conversation. Everybody's unique. You know, I went into it

Speaker:

in good shape, so that's a plus. But it's, it's

Speaker:

a chemistry issue, it's an environmental issue, it's a mental

Speaker:

issue. I think it's just all of these things combined, we just don't

Speaker:

know. And everybody's going to have a different journey through the process.

Speaker:

Some people are a hundred percent. We've probably got 50,

Speaker:

60% of the people that we've interviewed are 100% back. Everything's fine.

Speaker:

Some have some symptoms and, but, but nothing

Speaker:

anywhere near what they had. And others, a

Speaker:

very small percentage, have some other issues that

Speaker:

have presented themselves, but they would have been pre existing, just

Speaker:

unknown. So they're dealing with stuff now that they didn't realize that they had. And

Speaker:

they have to get through that process in the next part of their, their unique

Speaker:

medical journey to finish us off here. What is something

Speaker:

that you just wish you could yell from the mountaintop

Speaker:

to heart patients that will come after you because there will

Speaker:

be folks that come after you and I. Right. That's why we both host our

Speaker:

podcast. So what's that one burning piece of like,

Speaker:

advice that you just need everyone, every heart patient to

Speaker:

know? I'm going to expand that to the population at

Speaker:

large because there's this big

Speaker:

thing. It's called denial. And when we

Speaker:

experience something, and it's men and women,

Speaker:

I don't think it's impacted any greater on either side, because women will do it

Speaker:

to protect because they have other stuff to do, and they want to continue to,

Speaker:

you know, serve their family and do what they need to do, because in many

Speaker:

cases, they're relied upon for that. So they'll suffer this

Speaker:

chest pain and they'll recognize, oh, something's not right, it's angina,

Speaker:

it hurts, but it goes away. Or, you know, I'm short of breath,

Speaker:

but I just got to get this stuff done. Guys are, you know,

Speaker:

macho. Stuff can't be wrong. I'm not going to go to the doctor. All that

Speaker:

stuff is important. If you experience chest pain and shortness

Speaker:

of breath, there's something wrong. And I don't

Speaker:

recall your story in terms of, oh, yes, I do now. It just came to

Speaker:

me. We all do it. You were climbing mountaintops and

Speaker:

total exhaustion and going, no, I'll be fine. I'll just suck it up at the

Speaker:

top. When I. I don't know what's wrong with me, but it's fine. And your

Speaker:

husband's going, no, no, this is something should be easy for you to do.

Speaker:

Same here. I mean, I went on five more rides when I was experiencing

Speaker:

incredible chest pain that I couldn't have been a heart attack because

Speaker:

I was in good shape. Couldn't have been my heart, you should say it manifested

Speaker:

itself in a heart attack, but it's denial.

Speaker:

So I say it to the population at large because the more of us

Speaker:

that go into the medical community with the condition,

Speaker:

the more they'll recognize that. That many more people are symptomatic.

Speaker:

And if these people keep. If we as the people keep coming in and saying

Speaker:

something's wrong and they can't find it, something's wrong and they can't find it, and

Speaker:

they recognize, oh, this person has a myocardial bridge. I

Speaker:

need. This person has a myocardial bridge. This person, they're going to say, oh, these

Speaker:

things are symptomatic and they are

Speaker:

relatively prolific. And, oh, my gosh, if we start treating

Speaker:

these, how much better off we'll be. But when they

Speaker:

say 1% of the population is

Speaker:

symptomatic, meaning 25% of us have them, but only 1% is

Speaker:

symptomatic, I say, BS man. That's not true. You're

Speaker:

only hearing from 1%. We're the 1% that are coming to

Speaker:

you and saying, we have a problem, we need to get it addressed and or

Speaker:

you're dismissing the rest of them as anxiety and

Speaker:

stress and out of shape, right?

Speaker:

Women especially. Yes. Yep, yep. Women especially.

Speaker:

It's mind boggling. Jeff, I could talk

Speaker:

to you for the rest of the day. It's just so good to see

Speaker:

you and thank you for all the light you bring to my

Speaker:

life to other heart patients through your

Speaker:

podcast studio. And I will make sure to put in the

Speaker:

show notes how to find your podcast, how to find you.

Speaker:

You are doing so many important things for

Speaker:

the heart community and I could not be more grateful.

Speaker:

Well, Boots, thank you. Just the opportunity to share this conversation

Speaker:

with you on your podcast itself is a huge deal and

Speaker:

it's an expression of opportunity. And let me

Speaker:

say, I am grateful for you, for the ability

Speaker:

to do this and get it out to your audience as well. Thank you.

Speaker:

Well, you've heard it here folks. Thanks to Jeff Holden and

Speaker:

thank you for being part of this podcast.

Speaker:

Do let me know how you're doing. I always love hearing from

Speaker:

listeners. You can get in touch with me in the

Speaker:

DMS on Instagram. I definitely respond there.

Speaker:

You can send me an email bootsheartchamber

Speaker:

podcast.com I just

Speaker:

absolutely adore all my listeners and I am here for you

Speaker:

and I will not let you ever feel alone. You

Speaker:

do not have to walk this journey alone. So be

Speaker:

sure to join the community. Go to Patreon, follow me on

Speaker:

Instagram, you can find me on LinkedIn. And remember that I love

Speaker:

you, your heart is your best friend and you matter

Speaker:

in this world. So you deserve to be the CEO of your

Speaker:

health and keep advocating for being the

Speaker:

best person you can be in this world. Come back next

Speaker:

week for our last episode of Hope for the Holidays.

SUPPORT THE HEART CHAMBER

We rely on the generous donations of listeners like you to bring inspiration, hope and healing every week. Thank you for contributing to our cause.
DONATE HERE
B
Bill W $50
Keep up helping heart warriors!
A
Anonymous $100
Show artwork for Open Heart Surgery with Boots

About the Podcast

Open Heart Surgery with Boots
A podcast for heart patients by a heart patient
Formerly called The Heart Chamber Podcast, Open Heart Surgery with Boots airs every Tuesday for conversations on open-heart surgery from the patient perspective. Boots Knighton explores the physical, emotional, mental, and spiritual experiences of surgery with fellow heart patients and health care providers. This podcast aims to help patients feel less overwhelmed so you can get on with living your best life after surgery. You not only deserve to survive open-heart surgery, you deserve to THRIVE!
Support This Show