Episode 64

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Published on:

20th Aug 2024

"Am I loving well?" How a life-threatening heart surgery led to living on purpose

#64 Boots brings you her childhood friend, Todd Sykes (aka Toddy), a survivor of endocarditis, a stroke, and a brain aneurysm. At just 37, Todd faced a life-threatening situation during the COVID-19 pandemic, leading to two heart surgeries and a remarkable recovery. He needed his mitral and bicuspid valves replaced and had unknowingly been living with a bicuspid valve his entire life (just like Boots). He shares powerful lessons on the importance of loving well, prioritizing family time, and being prepared with insurance and wills. Todd's story highlights resilience, faith, and the need for physical and emotional strength. Todd reminds us to cherish each moment and plan for unforeseen events to protect our loved ones. Todd's journey serves as an inspiring reminder of life's unpredictability and the power of hope.

You can find Todd at @toddsykes (Facebook/ Linked In).

And while you are here, you are the first to learn about the Patreon community Boots will be launching in September. Check it out! Show some love and support for this podcast and keep it on the air.

Be sure to SUBSCRIBE and LEAVE A REVIEW. Help this podcast continue to grow and reach heart patients around the globe. This podcast has been downloaded in 55 countries and counting! xo Boots

Mentioned in this episode:

HVV-US

Transcript
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If there's a time to really try to cut out more time or

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place more emphasis and value on loving well is. What

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we like to say around here in my family is, you know, are we loving?

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Well, right, just because you never know what's in

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store, and so you want to create those good memories, right? So that even

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if something does happen, you know, there's some good memories for your loved ones

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to truly remember who you were and what you were about and

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the legacy that, you know, you lived.

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Welcome back to another episode of Open Heart surgery

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with Boots. Today is a very

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special conversation that I'm bringing to you

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this man, Todd Sykes, that I'm so

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excited to introduce you to. Todd and I

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used to run around the block together as kids.

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He was known as Toddy and I was known as Suzanne, my

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first name. And we grew up together in

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Edenton, North Carolina. And

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now, thankfully, we have both made it into our forties.

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Amazingly, we both have bicuspid valves.

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He's about to share his journey with you. It's amazing how

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we were both running around the block with these unknown congenital

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defects and we lived wonderful childhoods

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together. But now Todd is in his forties. He's got

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four kids, Preston, Brayden, Josie and

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Scarlett. He lives in Wake Forest, North Carolina,

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and he is the owner and operator

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of Freedom Benefits Source, which is an

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independent employee benefits insurance agency. It's

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amazing that he continues to run that business and he's going to

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get into how he is navigating his life now, because

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in 2020, Todd suffered endocarditis in addition

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to a stroke and an intracranial mycotic

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brain aneurysm. And he was hospitalized for

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39 days in and out of the ICU,

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a total of 16 days. They

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repaired his heart with two mechanical heart valves via

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open heart surgery and then coiled the aneurysm

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through his groin. Whoa. He's going to have to go into that with

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us. And he is

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thinking now that maybe the bicuspid aortic valve caused all

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of this, but we're going to get into that with him now. So, Todd,

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thank you so much for coming on open heart surgery

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with boots to share your story with us listeners, and it's just

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so great to reconnect with you again. Yeah, and thank you for the invite,

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boots. Appreciate that little background. Definitely was

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fun times back then in childhood, but now we're all grown up and

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I guess more thankful to even be alive after what we both

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been through here over the past few years. Congratulations

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on your recent successes. So, yeah, you know, it's. It's been a

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trying time, you know, almost five years. Coming up next year since. Major

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health crisis, life changing event, healthy as you could ask

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for. At age 37. I was 42. I'm 42 now. I was age

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37 at the time. And no known

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conditions. Right? I ate well, I exercised, probably not as much as I

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would like, but no medications, no chronic illnesses, diseases that I knew

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of. And all of a sudden, I became ill in February of

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2020, right after our third child, Josie, was

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born. And then I would get well. Then I was really ill again, and well

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and ill. And that was the case most the entire year. Extreme

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flu like symptoms, 105 degree fevers at night, ten

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blankets wrapped around me in the bed, still cold. Didn't know what was

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going on, was going to every specialist known to man in wake

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forest, and had about every test known to man done.

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No one could figure out my situation. And so I

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became severely anemic. I was going in for iron infusions every

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two weeks, going to an independent hematologist. Oncologist.

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Wasn't getting well there. I'd maybe feel better for a

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day. And then it was right back to the same old symptoms.

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I'm a loyal person by nature, and I really felt

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that this independent doctor had my best interest at heart, and so I

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didn't really want to take other measures to go seek

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someone else. As far as a second opinion,

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though, it did get to that point with the help of my parents and my

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wife, who kept egging me on. I did request to

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be seen somewhere else at least a couple of times from this

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hematologist, and it actually did not happen. So it came down to the

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point, boots, where, you know, I just had to pack the bag and go

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check myself into the erde. And so October,

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I could be wrong on the dates, but October 30, I believe,

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2020, I looked at my wife. I was disabled on the couch. I was

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living on the couch, sleeping mostly on the couch. Most every night. I told her

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to pack a bag and take him to the ER. And that's when everything

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really began, and that's when we started to really find out the severity

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of my situation and what was actually going

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on. And, of course, this is during COVID. Yes, it was

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during COVID So, you know, another layer of the cake. Right, if you

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will. I go to the ER. They do a ct scan.

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They come back after, like, I don't know, quite a while and say,

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yeah, all of your organs are enlarged. You would not have made it another week

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or two if you didn't come today. And I'm saying, okay, well, what's

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going on? And they said, well, we're trying to figure you out. You are now

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going to the main hospital. So then they put me in an ambulance, gave

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me some pain medicine, and sent me on my way to wake med

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main, which is East Raleigh. And there I stayed for

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39 days, but it took well over a week for them to finally

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uncover and find that I had endocarditis. They did a

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EKG after a few days and found

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that, of course, the heart was significantly

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impaired. Right. And they basically rushed me into heart

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surgery. I think it was like, a day or two after that EKG

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or echo. I'm sorry, it was echocardiogram. And for, you know,

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for those mechanical heart valves surgery. How long was

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it before they did the echocardiogram?

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Oh, kind of going back to the details

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conversation. I could be wrong, and I'm sure my wife

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knows this exactly, but she's good for that. You

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know, I think it was only a couple of days, really. You know, I think

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that was pretty immediate. I don't think it was the day of. It might have

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been this. It wasn't the day of. It was the day after. You know,

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I think it was somewhat immediate. Right. If you want to call it that.

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But I know that I think it was done on, like, a Saturday or Sunday,

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and I don't think they could get me into surgery until that following Tuesday, if

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my memory serves me correctly. But, you know, that can be a little

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shaky now, for sure. Okay, so they replaced which

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two valves again? The mitral and the

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atrial. I'm sorry. Aortic. Aortic

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and mitral. Okay, so then you thought you would be well

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on your way. Yeah. So it was scheduled to be a four hour

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surgery. It became an eight hour heart, open heart surgery.

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Finally, by the grace of God, made it out of that

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surgery. The day after was when things got

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really hairy, actually. My heart started to fill up with fluid,

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which I know is a very common occurrence in post heart

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surgery patients, and that's one of the things that they monitor,

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I think, quite often for everyone who goes through that type of surgery. But they

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had tubes actually installed below

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my heart to drain out the fluid. And then at

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one point during all of that, in the recovery process from that

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going on, they did have to rush me back into

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surgery because I did almost pass away. I think that was probably the closest

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call was post heart surgery. When my heart

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started to fill up with fluid, I felt fine. You know, I'm laying in the

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hospital bed, things seem normal. I'm cognitive. I'm

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aware. I'm not in any pain, really. Right? And then all of a sudden, I

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have 25 nurses in the room telling me something's going on, and I'm

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saying, well, what is it? I feel fine. I. They said, no, it's not. It's

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not okay. We have to take you to surgery. And then before you

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know it, I'm. I'm on an operating table. So, yeah, that

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was a. That was a close call. I think that was the point when my

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wife. Because I think she had just gotten. She was there with

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me. I don't know, every day, it seemed like at the hospital for the stretch

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of 39 days. But I know it was really tough on her. You

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know, it's really easy to kind of look at me and I. And kind

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of go through my personal situation with the

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health crisis. But she was really thrown for a loop, you know, during

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this whole process, especially in the beginning, she didn't even know what was going on.

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And the lack of the communication, partly because of

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COVID processes, were really restrictive. But, yeah, that was

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a close call. I believe when my heart started to fill up with fluid,

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they were, of course, got that taken care of, under control.

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So there I go, laying a hospital bed for days, in and out.

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You know, they're. They're trying to monitor my progression, my recovery.

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And it went well for the most part. I mean, I. As far as I

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remember, I was eating normal. I don't think I was the best

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patient. I was known to be a fighter. They

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called me miracle man in the hospital a few times. I think I

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definitely had some doctors and some, you know, nurses kind of

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shaking their heads and trying to figure out how and why I'd survived, even when

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I went through. And. And I definitely wasn't the easiest

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patient. I think it was a little needy, you know? You know, 37, 38 year

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old man is not used to being laid up in a hospital bed for that

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long and knowing my kids were at home not seeing me and vice

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versa. And, you know, I don't even think we barely facetimed just the pain

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of having them see me in that situation. I felt like it would make

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matters a little more worse, and. But, no, it was. It was

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tough. So I was finally at the day where they

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come into the. Into my room, and they say, todd, we believe you're well

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enough to be discharged tomorrow. I say, wonderful.

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Okay, so I'm going home, right? Like, hey, here. Here's the time I

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get to see my kids, you know, I had seen them because my wife was

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the only one allowed in the hospital. Kids were not allowed. Right. So

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that day comes the next day. I get up in the morning, it's like

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435 o'clock in the morning, and I have to go to the bathroom. I proceed

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to get out of bed, and as my feet hit the floor, as soon as

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they touch the floor, I drop straight to the floor code. Stroke is

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called. I have 30 nurses in my room. In a matter of about 20

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seconds, I had a stroke. Again, cognitively aware

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of my situation, felt normal. Right. What's going

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on? I feel fine. Well, no, you had a stroke.

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Rushed to the operating table, here I am,

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you know, having a stroke, which, of course then led to the mycotic brain

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aneurysm. So now I'm getting a neurosurgeon involved to

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try to help me overcome this, this

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aneurysm. I believe at the time it was around ten or

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12 mm. Don't quote me on that. But they did

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have to go in through the groin intravenously

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and coil the aneurysm, which I find

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is just magnificent how they do that. And, yeah, it was

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apparently a very, very tedious type of surgery because

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where the aneurysm is located, which I do currently still

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have, by the way, I think it's less than 2 moment.

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But they had to be very careful because, you

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know, of the placement of it. They could have easily made matters

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worse if they tried to do anything more than coiling it, which

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is why they haven't done anymore, because the

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doctors here, and they pretty, I think they pretty much say any neurosurgeon,

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for that matter, in the country may not decide to go

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further in trying to take care of this

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aneurysm more than we have, just because of the placement of where it is, because

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it could lead to some more severe problems. So at the

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moment, that's where we stand. You know, it's coiled still.

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It's being monitored every two years. I'm going in for an MRA.

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I just had one about a month ago. Nothing's changed. It's still

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there. You know, there's probably a less than 2% risk for it to

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rupture. So there is a risk, but it's very, very low. And

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yeah, I see a cardiologist once a year. Right. So, I

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mean, all things said, you know, it is a true

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miracle that I am still sitting here

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today, you know, talking through this with you and sharing to

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the listeners because it's many, many wouldn't have made it

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this far, right, going through what I went through in the hospital. And so I've

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yet to really talk much about it. You know, I've explained it to

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colleagues, friends, family, of course, haven't written down much of my

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experience. That's something that I plan on doing, moving forward and trying to get in

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a spot where I can do that, share my story, because I believe, you know,

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there are people out there that are listening now or even that will listen in

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the future that it could definitely help and empower. But I will

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say, you know, it is by the grace of God I'm still here today. And

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I will continue to give him credit because I felt his presence,

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absolutely felt his presence, more than I ever have during that stay

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in the hospital. I had a peace overwhelm me like I've never felt in my

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life. It's still there, right? Maybe not as

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present. I was there, but, you know, I

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never was afraid, even if it was my time to go. I

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remember feeling, you know, definitely not afraid whatsoever. The only thing

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that scared the living daylights out of me was leaving my children,

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newborn baby, my wife, at home, caring for the children,

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leaving her in the situation that she was in, because we were

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not prepared for me to leave this earth at that point in time. We did

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not have an estate wheel trust set up. We had nothing prepared.

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And if I would have passed, that would have just opened up a whole new

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can of worms. But no, there's a whole different side of my story

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with my wife and actually kind of wanted her to share. But

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maybe we can save that for another time. But I think, you know, a lot

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of people tend to look at the victim, the patients themselves, and not really the

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family members. But, you know, believe me, she went through probably just as much, if

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not more, than I did here at home. But no, by the grace of God,

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we're here. We're, you know, I'm alive, kicking. I'm probably physically in better

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shape than I've been. You know, I give. I get up every morning, a little

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different perspective in life, on life, and definitely give my thanks and

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prayers to being able to continue to live on this earth, to

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care for my family and see what I can do to continue to help others

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in the community as well. Thank you, Todd, for sharing all of

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that. And it seems like you have come away with

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some hard learned lessons, one of which

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is having our affairs in order. Right?

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So you said you didn't have anything set up

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and you would have really, you know, it almost sounds like

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a regret that things had not been put quite

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in order. And I mean, I don't blame you. You were 37. We don't,

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none of us think in our thirties that, or even

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in our forties that something could happen. But life does

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happen. Life does keep on lifing, as I like to say.

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So is that some advice you would like to impart on

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listeners is to be more

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prepared, be more proactive in

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making sure the back end is taken care of? Oh,

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absolutely. And me being in the benefits world, I've been an insurance

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broker now for almost 15 years. And of course

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I was overly prepared for something like this to happen. I had

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long term disability plan actually still paying out on me at the

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moment. If you don't have one of those plans, and you are a breadwinner of

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a family, you need one. Just that simple. So

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it's really helped paint a testimony for me and my own business to

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explain value, importance of benefits, especially the younger folks,

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because many folks in their thirties, right, even forties, you know,

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don't have insurance, right. Maybe they're, they don't have general

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medical insurance. They especially don't have any supplemental plans.

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I had two heart plans. I had a long term disability plan. So,

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yeah, all of these paid. And, you know, again,

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financially, through my situation, we actually came out ahead

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because of all the supplemental plans. My blue cross blue

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shield medical plan paid the hospital bill in full, which was well over

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$700,000, paid 100%, not a dime out of

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pocket, and all these other ancillary plans that I had paid

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cash directly to me. So of course I'm not working, I'm not scaling the

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business like I, of course, would have liked at the time. My wife didn't work,

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hasn't worked for now about ten years now, starting a business, as I mentioned

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earlier, but there was no income coming in on her side. But I

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will say she works at home. Let me add that one. But yeah, I mean,

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without it, we would have been toast, right? I mean, it would break financially,

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anyone really, who wasn't prepared if they didn't have insurances.

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And so not only that, but then you talk about the estate and the will,

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which I did mention. I mean, I didn't, we didn't have that in place, so

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we wouldn't, we would not have known if something were to happen where, you know,

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that becomes, you know, just a melting pot

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of things and negative things that can really

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stem from not being prepared, especially in a tragic

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loss situation that none of us are really prepared for. But it's hard to have

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those conversations, most people don't want to talk about life insurance. They don't.

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They don't see maybe the value because they feel they're healthy

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and nothing's going to happen. Well, you know, I'm here to tell you that things

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do happen, and they'll happen at a moment's notice, and at that

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time, it's too late. Right. Like, right now, I need more life insurance.

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Can't get it. I won't have. There's no insurance carrier. I'm

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appointed with about 36 of them. They will not appoint. They will not

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insure me at the moment. So, of course, with my current condition

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still having the brain aneurysm, fortunately, I do have some.

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You know, I don't believe it's enough. But going back to your point,

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boots on, being prepared. I mean, I can't stress that enough,

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really. Especially if there's people counting on you, loved ones at home, if you're

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a breadwinner, absolutely. You need to be prepared. Take

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it seriously. Healthy, not healthy. If you're not healthy, you may

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have issues being insured, but maybe there's some carriers that a little bit more liberal

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can. Can help you. But, you know, there's. There's options out there. You just

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have to ask somebody. You know, feel free to ask me. You know, I know

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a lot about it, and I've even got a firsthand testimony to speak on it

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and how it's important. So. Yes, and

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now that you've lived through this and you know that you have this

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aneurysm in your brain, like, how different are you

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living your life now compared to

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before. Before 2020? It's funny you asked that,

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because I got discharged from the hospital. I'm sorry. It was

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October 29 to November 30, 2020,

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when I was discharged. And I remember asking my

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cardiologist at the time because we had a

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snowboard trip planned, my son and I, and

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I still wanted to go snowboarding. Right. And so I've got

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an aneurysm. Right. Doctor, can I still go on the

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trip? Well, it's only. It's still two or three months out. And I thought

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for sure there'd be some protocol like, no. No physical

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activity such as that. Right. For at least six

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months. Not at all. That was not the case. He cleared me. Absolutely

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cleared me, even, like, two, three months later. Said, you know, you're

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pretty much on your own. You know, you're. You're kind of living at your own

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risk, just kind of do what your heart feels and, you know, you

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know your abilities better than anyone. But at this point, you

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know, you are free to do what you need to do. And so

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I ended up taking that snowboard trip with my son. And I don't think we

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took but like two breaks for about 9 hours. We went out to, went out

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to, I believe it was sugar and just had a, had a ball. And

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so, and so since then, I've really kind of tried

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to try to live life. Maybe not as close to

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the edge as I did, but I still press the

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limits. Not near as your caliber boots. I'm

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not even close to, you know, your caliber as far

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as the adrenaline pushing the limit topic. But, you know, I

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do love to go surfing still, you know, I still love to do physical

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activities, but I do have to remind myself and it's tough. It's hard, right,

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to remind. Oh, wait, you got, you have an aneurysm, ty, like, slow down,

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bud. You know, one. One wrong move and in the right spot

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of, you know, and so I try to, I try to just

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try to take each day as it comes and again wake up thankful

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to live it and take breaks throughout the day

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to keep my head, you know, where it needs to be and focused on, you

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know, whatever it is I'm working on at the time. Stress is a killer for

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me. I do get easily stressed and overworked. My

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brain, I'll shut down if there's too much commotion, too much

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stimulation. My brain just can't handle it and get a lot of that with four

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kids. So that's, it's a daily occurrence. Trying to work through that,

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you know, going back, you know, I do have, again, a lot of. A lot

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of support, loving wife who's definitely there for me.

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So I wouldn't be able to be here today living in the manner

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I am, you know, without all of that and without

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the help of our higher power. I call him God, Jesus. And

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so he's there for me. I, again, I'm a

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little closer to him today than I was, but I try to live a healthier

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lifestyle. We try to eat well, right? You know, so your bodies are a

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temple, right. So we need to take care of our bodies. And I think you're

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very aware of that. Boots. You do a great job. It looks like, you know,

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eat the right foods. Exercise is important. We have a family

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trainer now, my wife and I, my two boys, we go to a

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trainer once a week. My son's a big hockey player. We're

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a big hockey family. Go Kane's. And so we love to go to

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Hurricanes games. I love watching him play, but we're trying

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to work towards his goals and help him meet his goals of making it

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to the NHL because that's where he wants to go. And so I'm trying to.

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Trying to get him back active and build up some, some lower body

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strength. And, you know, I lost 50 pounds during that health crisis

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boots and I lost pretty much all the muscle in my legs. And I'm just

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now getting to the point where I can rebuild the muscles in my legs. And

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so I've been wanting to get to see a trainer. I already know how to

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work out. I've always really known. But I would say the trainer is probably more

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from a motivational standpoint, just that once a week we see them on

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Mondays and then that sets the tone for the rest of the week. You know,

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then downstairs we have a small gym downstairs,

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treadmill, elliptical, have a squat rack, few, few dumbbells. Right.

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So, you know, exercise, strength training is kind of in the game for me

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now. And that's something I'm really trying to focus on is rebuilding

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my strength and, you know, muscles really, and just

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trying to stay again on top of. Top of my health just because I have

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a lot of people counting on me. And, you know, definitely got a different new

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chapter here in the book that is presenting a whole new set of challenges. But

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no, again, I think, you know, with those types of

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things and that life, those lifestyle choices, hopefully we'll

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provide some longevity and, you know, be able to see the

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grandkids and, you know, the children get married one day and all the

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above. Right? And then maybe my wife and I jumping in a mobile van to

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come out to the tetons to. To snowboard with boots. Who knows? I don't

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know. I'd love that. In

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closing, thanks for sharing your story, by the way.

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Again, I just have these flashbacks of you getting on my

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nerves when we were kids.

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Not me. No, no, no. I mean that the most loving

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way. It's just

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amazing how every heart patient I

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have the privilege and honor of interviewing, you included.

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It never ceases to amaze me the

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power of the human spirit to bring us through

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the toughest of circumstances and then to be

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able to tell the story with a

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reframe of hope and

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perseverance and gratitude. I

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would say that the unifying point of

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view amongst all the heart patients I've interviewed now

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is gratitude. And would

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you say that? Or. Let me back up. My

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last question for you is, what is

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something you wish you could just give to everyone in the world?

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Right? Now, from your lived experience. And I

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say that because, you know, when I spoke on the TEDx stage,

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I wanted to give away the perspective that we aren't

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promised tomorrow and that I see a lot of the

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world, or at least in the United States and our culture,

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living, like, letting little things bother them

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and staying in relationships, jobs,

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whatever, that doesn't serve you. And for me,

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with my journey, I have learned and now

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actively every day, live out the perspective that

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I only say yes to what feels right and I say no

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to what doesn't feel right and I no longer abandon

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myself. Right. And so that's, like what I want

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to impart to everyone that's listening. From my point of

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view. What is something that you want that you wish people

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could, like, put into practice today from your experience?

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If they never get to go through heart surgery and never get to go through

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what you went through, like, what is a lesson you want them to

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know? Well, I mean, that's a. I could. That could go in a

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few directions, but, I mean, I don't know what choose one pops to mind

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is just awareness of, you

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know, what could potentially happen. Right. And the importance

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of family time. Right. Like, you don't get time

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back, so living out each moment really like

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your last, because again, you really don't know.

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Right. And so I think just living in each moment and

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really being there. Right. And I have a really hard time with that

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because, you know, I'm a business owner, so, you know, I'm on

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technology a lot. You know, there's emails coming through. I'm always on my

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phone. Phones are a killer. Right. And so

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I'm the first to admit, you know, there's a problem there that I'm aware

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of, but we're working there. But even with all that said,

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it's. It's living each day like your last, truly

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finding time with family, friends and

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living those out undistracted. Right. And I feel like this

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world is so full of distractions, especially

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now in today's climate. Unfortunately, where we are as a country,

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you know, it's family is even more important than ever now. And so I

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feel like if there's a time to really try to cut out more

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time or place more emphasis and value on loving,

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well is what we like to say around here in my family is, you know,

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are we loving? Well, right, just because you never know

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what's in store and so you want to create those good memories. Right. So

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that even if something does happen, you know, there's some good memories for your loved

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ones to. To truly remember who you were and

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what you were about and the legacy that, you know, you lived.

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And so I think that's probably the biggest thing because I think

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at the end of the day, you know, yes, we could be successful in our

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careers. We can chase fame, money, fortune. Yeah, that's all great.

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And I did that for ten years. Corporate in the insurance industry. That's why

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I left it and became an independent broker, just because I was.

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I felt a deep conviction of

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trying to find and navigate ways, yes, to make

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income, but to create more open space to spend for

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family time. And so that's never been more important

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than till after this health crisis. And, yep, still working

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on, of course, that on a daily basis. But I'll say it's much,

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much better than it. Than it was. But what we don't is want

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people to wait till something may happen, right. What we want

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listeners to really do is to take these things into serious

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consideration and we pray nothing ever happens, but really try to

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put these good practices in place today. Right. And

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think, okay, what could I do? Maybe it's setting my phone aside

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only for certain times of the day to check my email, or

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maybe I get my responsibilities done before everyone gets up in the

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morning, you know? So that's something that I'm still trying to work on when

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it comes to working out and being physically in shape. But, yeah, family

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time, you know, me as a family man, that's what's speaking to me,

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and that's really what resonates with my heart, you know, as you ask that question.

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Beautiful. That's a great place to end. Todd Sykes,

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thank you so much for reconnecting with

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me on open heart surgery with boots. I know your story is going to

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help so many people, and I will have in the show

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notes. If you want to reach out to Todd and thank him

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for sharing a story, I'll have his contact

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information there. And be sure if you haven't already

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subscribed to this podcast. And the greatest thing you can

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do for this podcast to help it grow is to leave a review

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and share it with others. Please be sure to come back next week

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for another inspiring story of hope,

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inspiration, and healing. Thank you so much, boots.

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About the Podcast

Open Heart Surgery with Boots
A podcast for heart patients by a heart patient
Formerly called The Heart Chamber Podcast, Open Heart Surgery with Boots airs every Tuesday for conversations on open-heart surgery from the patient perspective. Boots Knighton explores the physical, emotional, mental, and spiritual experiences of surgery with fellow heart patients and health care providers. This podcast aims to help patients feel less overwhelmed so you can get on with living your best life after surgery. You not only deserve to survive open-heart surgery, you deserve to THRIVE!
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