Episode 80

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Published on:

17th Dec 2024

Living Fully with a Mechanical Valve: Insights from Joel Oliver

Hey Heart Buddies! For the remainder of the year, I am bringing back the most downloaded episodes of the year.

First up is Joel Oliver! His "easy peasy" heart surgery story might surprise you. Joel takes us step by step through his mitral valve replacement journey, revealing moments of doubt, resilience, and unexpected challenges along the way. While Joel's surgery marked a significant event in his life, the real intrigue lies in his post-surgery perspectives. Did this intense experience radically change his outlook on life, or did it simply become another chapter in his adventurous narrative? Whether you're a heart patient, a caregiver, or just curious about human resilience, Joel's insights promise to resonate deeply.

Join the Newsletter for almost weekly content for this podcast and other heart related news.

Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.

If you just want to support the show as a one-time gift (thank you), go here.

**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

How to connect with Boots

Email: Boots@theheartchamberpodcast.com

Instagram: @openheartsurgerywithboots or @boots.knighton

LinkedIn: linkedin.com/in/boots-knighton

Boots Knighton

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Open Heart Surgery with Boots

Transcript
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It was rough. But after that, I was up. I was okay. And I've been

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living a very, very great life ever since. You know, I don't really

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notice that there's anything ever, ever was done with my heart.

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Welcome to open heart surgery with Boots, the

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podcast that gets to the heart of what it's really

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like to go under the knife. I am your host,

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Boots Knighton, here to share the ups,

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downs and everything in between about

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heart surgery from the patient's perspective.

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Before we dive into this operating room of our

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shared experiences, please make sure this

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podcast stays on the healthy side of the

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charts. If you're finding this podcast helpful or

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inspiring, please subscribe and leave a

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review. Your support is the heartbeat

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that keeps the show alive. And

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if you want to be a part of an even closer knit

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community, come on over to our Patreon.

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Join us in the heart chamber. You can

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find

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us@www.patreon.com

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openheart surgery with Boots. There you'll get

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exclusive content, behind the scenes stories, and

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a chance to connect with other heart warriors.

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But for now, let's open up and explore the world

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of heart surgery from the other side of the

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scalpel. Welcome. Joel Oliver.

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Thank you for tuning in with us from Calgary,

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Canada. I tell you, you Canadians, you just keep coming

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into my life. I'm losing track of how many people from Canada I've had

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the honor of interviewing. So thank you for

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coming on. And Joel, you are such a breath of

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fresh air for we heart patients. Your story is

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easy peasy. And all of us heart

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patients, we all have our own stories. And I

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think it's important when we listen to each other's stories

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that it's so easy to compare and to

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maybe even have a little envy that someone has it

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easier. But, you know, we're all on our own

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journeys and we can't even begin to understand

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the power of sharing our stories. And so I

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am so glad that you reached out and I'm honored and I

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know we're all going to be better for hearing your story today. Thank you,

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Boots. Well, just the few minutes that I've gotten to speak to you already, I

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mean, I love what you're doing and you're a shining light here. You're

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a very bright personality. So I appreciate already that you've made me feel, like,

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very good since we started chatting here. So thanks for what you're doing and the

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opportunity to be on here. Yeah, yeah. You're like Mister

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Mitral Valve and you're the only person I've had the

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opportunity of meeting who's had, like, a simple valve

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repair and then when about your day. And

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so, I mean, yes, you've had a bit of. You had a bit of a

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rough road right afterwards, but let's dive in.

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Your mitral valve repair was in 2018,

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but walk us back to, like, what led up to

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that. Sure. Yeah. And I guess it matters in this context. It was actually

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a replacement. So I have a completely not

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natural, titanium mechanical mitral valve

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inside. So, yeah, that's an interesting fact to

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share with new friends when you meet people. So, yeah, I mean,

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these days leading up to now, like, since

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the surgery, things have been pretty good. I have a business, I work

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remotely. So I was quite nervous when the

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whole surgery thing was coming about that would impact my life and I wouldn't be

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able to travel anymore. There's, with this mechanical valve blood

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test required. So a lot of that was running through my head, what's going to

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happen once the surgery takes place? But I am happy to say that since that

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happened in 2018, aside from the bit of recovery time, I've lived quite

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a. Not only a normal life, but a great life. And I'm

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quite fortunate for. So, leading up to things in

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2018, I would say probably seven to ten years

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before that, they had just been watching me. There was a

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couple of instances over that time where I ended up in hospital with some atrial

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fibrillation. So pretty scary. Heart rhythm

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is out of whack. Feels very different. You know, it feels scary, and you

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don't really know what's going on initially. So there's a couple of times

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that happened, and that's what led them to discover that I had a

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leaky mitral valve, essentially, it just wasn't working efficiently. So your heart

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is pumping to try to move the blood around, and it's not working

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efficiently. It's getting tired, essentially. Like, your heart is wearing out.

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So they were keeping an eye on it to see if we would have any

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further developments that would necessitate surgery. And it did end

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up that, I guess it was somewhere around

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2017. They tested me and said, yeah, you've got to get this surgery.

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And obviously, I felt a lot of dread come

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over me at that point because I wasn't actually expecting it. Of course, I knew

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they were monitoring me, but at that point in my life, I felt pretty good.

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It was summertime, I was hiking, I was going to the gym. Didn't really

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have any noticeable issues. Like, you know, your story

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was quite different than mine because you were having some very obvious

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problems. And you're unsure what was going on. I felt pretty

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good. I would get some irregular heartbeats sometimes, but I didn't feel

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that my energy was super low. Although I guess when you're living in that

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situation, you don't necessarily have a reference point, like how good I'm

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supposed to feel. But at that time, I didn't think that that surgery was

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coming. Now, an interesting side note here is my mom.

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This is a genetic thing that I have. She actually had the same issue and

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the same surgery, but she had it much later in life than me. So I

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was 28, she was in her early fifties, meaning that she had the same

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surgery about a year before I did, roughly.

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So I actually got to watch her go through it all. And I kind of

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knew a little what to expect, how it was going to go about the

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medication I had to be on. So I saw that coming. I kind of

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knew what I was in for, although you can't really be fully prepared.

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But, yeah, I got the news. And then about a year later, I went in

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for the surgery and a few months of recovery, a little bit of

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rehab, and I was feeling pretty good. I think 28 year olds are not

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sure it happens, but that's not who they are expecting, typically, to see walk in

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with that issue. So I was. I was fortunate. I bounced back pretty

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quick. And things have been pretty good since then. Just like that?

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Yeah. I mean, you know, you can make it sound

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relatively simple by telling the story and looking back. You

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know, when you're in that situation, it's difficult,

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but now that it's in the past, it's just. Yeah, it was tough, but when

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it's. When you're actually living through it, which is the worst

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of it all, I suppose. It sounds. Time seems to crawl.

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Like, if you want to know how to slow time down, because, like, you hear

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that, right? People say, how do we slow time down? And time

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moves so fast, I'm like, wait for heart surgery. That will

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slow time down. Exactly. Yeah. When

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you're in it, you're pretty miserable. You're not feeling great, but once it's in

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your past, it's hard to really associate with that again. Like, I know it

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happened, but I feel pretty good now, so it's hard to say

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how bad I did feel. But, yeah, you know, some tough times for sure. Anyone

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that goes through that. Yeah. So your surgery was open

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hearted. Yep. And do you remember how many

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days you were in the hospital? Because if you were 28, you were

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probably out in a blip. Yeah, it was no

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more than a week I was out. They let me because there's a.

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At least in the United States, and I would think it'd be the same in

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Canada. As a rule of thumb, for every decade you're

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alive equals one day in the hospital after heart

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surgery. Okay. Yeah. I hadn't heard about that rule, but it wasn't far

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off there. It was probably four to five days when I finally

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got to go home. Certainly was no more than a week. Yeah. I'm just

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wondering, like, with a spring chicken like you, like,

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how quickly they let you out. Cause I was like, you know, at the time,

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I was 42, and I was in

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the hospital for four days after surgery, so it was,

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like, on the dot, and I was doing so well. I could have gotten

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out in three. But they said they were sticking to that rule of

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thumb on purpose because it really does matter

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how, like, it really is a proven

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formula. I was quite

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agitated, I guess, or irritated. My family told me that I

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didn't really realize when I'm in it that I was not being the most friendly.

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I mean, I wasn't yelling or swearing at anyone, but my family came to visit.

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And as you probably know, you're just not in a normal head space. You're

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drugged up. Everything hurts. So that was one of the pieces of feedback

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I got was that I wasn't very polite.

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But, yeah, that was an interesting

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thing to go through as well. Like, one memory I have was when they first

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got me up to walk around, which, as you know, they want to do pretty

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quickly after your surgery, get you moving. And again, it's tough to

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think back to that. I was actually in this situation, but

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I could barely make a few steps down the hallway. And

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it's like, yeah, that actually happened. It almost seems like a dream sometimes,

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but I could barely walk in a lot of pain.

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But, yeah, I was good enough to be sent home after that short period

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of time and spent a lot of time on the couch after that.

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So I had several questions. First of all, do you know the

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name of the genetic condition that caused both

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your mom and you to need a mitral replacement?

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It would be mitral valve prolapse, from my understanding.

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Okay. Okay. And what

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medications are you on now?

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I'm on warfarin, which is a blood thinner and also a

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baby aspirin every day. Now, I think the aspirin part is not

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necessarily for everyone. It's at the doctor's discretion. My mom doesn't take

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it, but she is also on warfarin. So for now,

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hopefully the foreseeable future. That's it. Or maybe even less if we get

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a technological advancement someday where we don't need the

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warfarin, or at least a better version of that. Cause if you know

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about warfarin, it messes with your diet and what you can eat.

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But, yeah, that's all for medication. Okay. And

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I mean, from all the heart patients I've had the honor of talking with

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over the past couple of years, if that's all you're

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on, good for you.

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I think so, too. I know when I first came out of surgery, there is

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a couple others that I was on. One of them is quite,

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quite serious in terms of side effects and people not wanting to

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be on it. So I was happy to get those ones out of my life.

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And, yeah, hoping that it can remain this way.

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So, one of the many reasons why I started this podcast

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was so folks could hear from the patient's perspective

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what you've done for us. Thank you. And I would love to have a

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conversation about the mental, emotional,

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spiritual parts of your journey, because

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I have found that our medical

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industry and I do feel like it's more of an industry at

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times. At least it can feel that way. The medical professionals

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are really great at saving our life and keeping us alive,

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and then that's about it. And then we're kind of

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left to figure out how to bring the rest of our soul

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along. And how

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have you experienced life, engaged

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with life since heart surgery? Like, do you

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feel like things have shifted within you? Do you feel like you're a different

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person? Like, how have you shifted

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mentally, emotionally, spiritually? Mm hmm.

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That's a great question and something that I really admired about your journey,

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because if I understand correctly, and correct me if I'm wrong, you

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kind of. You were so grateful that you ended up going through it because

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of the changes that it imparted on your life, which is really

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admirable. You were really positive and optimistic about the whole

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thing. So, yeah, that definitely crossed my mind before I was going in there, and

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I thought, you know, this could, the odds weren't

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showing this, but this could be my last day of life, could be my last

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day seeing my family. I don't know, like, will I be a changed person

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when I come out of this and be so grateful for every day?

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I don't think that. I don't think I was grateful

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enough. So I wasn't really on the path and the mindset that you

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had, although I would have liked to been. But I know in the years following

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the surgery. I just went through a lot of transformation and self

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improvement as it was. And I am pretty mindful and

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grateful of everything that I have, the fact that the surgery went so well,

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the life that I've built. So it's hard for me

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to attribute a huge shift in my thinking to that.

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Although, like I said, I would have loved to really feel that way like

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you did. And I think it's important to be mindful of that and

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have that mindset, because it is easy to just slip

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back into just the day to day and not really being grateful

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for the life that you've been given. Whether it's because of a heart

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surgery that allowed you to live a healthy life past

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when, you know, perhaps you would have, or if you don't have any health

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issues at all, there's nothing wrong with being grateful. I think it's very important to

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do so. In terms of a big shift, I didn't really

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get what I expected. I thought I would be a little more.

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I thought it would be a bigger shift or I just wake up every day,

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you know, looking at the sky, but it didn't really happen that way.

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But I still am so grateful for everything that I have in life

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and the fact that I'm here and every day that I am able to live

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healthily. So perhaps that did play a role. It just didn't really.

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Maybe I wasn't in tune enough with myself to really

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pick up on where that came from. If that makes sense,

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that could be it. And not to play the age card, but

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it kind of does. Like, I am. Like, I was in my forties by the

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time I heart surgery came around. So I'd already been around the block a few

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times with other challenges, and I'd already spent quite a bit of

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time in therapy for other reasons. And also I

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had been really, um, growing my awareness

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muscle. And you're in your twenties, and I. I mean, I think back

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into my twenties, I probably would have had the exact same answer you just

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gave. So every decade has its

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own level of self reflection and awareness.

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But, yeah, as you age, things do

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hit differently. Not that I'm a whole lot older than you,

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but. Well, I appreciate hearing that because it helps me feel better

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about it. Perhaps because I thought maybe I'm not grateful enough or why

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didn't I have that big shift? So that. That makes it make

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a lot of sense. I'm not here grading you. I'm not going to give you,

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like, a letter grade. And

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I. On your experience, I mean, everyone's

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experience is so personal,

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and I just can't emphasize that enough,

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actually, because you're not the first person who has reflected back to

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me. Like, I'm not saying. You just said, am I doing it wrong? But,

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like, people are worried, am I not this? Am I not

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enough of this, or am I too much of that? And we're all having

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the experience we need to have in any given day

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with any challenge we're given. It's just so unique,

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and I love that you are just like, well, this is just how

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it was. Like, that is fine. It's more than fine. It's

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your real lived experience that is a

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great reminder. Yes. Because everything is uniquely yours. And now

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that I'm saying it out loud and you're talking to me about it, I'm thinking,

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why would you even think, like, it has to be a certain way. Yeah. Please

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don't put that pressure on yourself. Right. Yeah.

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And I've thought about that again. You just look back, and I know that I

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went through it, but it was just like, it was a big deal. But people

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can look in, you can share this story with them, and they would think, wow,

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that's scary. I would never want to have to go through that. What was it

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like? That's. Instead they cut you open. Wow. But when you're going through it,

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you're just going through it. Like, I don't know. I didn't have a choice. It

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just happened. And I got you go through the recovery, and here we

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are. Yeah. It's a different perspective. Having actually gone

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through it, I think, versus what the general public would think who wouldn't have to

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go through. Just like I would think about anyone with any other medical condition.

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Wow. I'm glad I don't have to go through that. But as heart surgery patients,

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we had to go through that one, and we know all about it. It's a

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moment. It is a hard moment, but it is a moment. And

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I was just trying to remember the other day, my

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journey, because it's, you know, been a few years now.

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I cannot remember getting ready to go to the hospital.

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I don't remember packing for it. I don't remember. I barely

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remember the drive. It's like a five hour drive from here.

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Wow. There's just parts that I just don't remember anymore.

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And that's great. There's other parts that are just like it

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happened, but, yeah, it's. The brain

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has an amazing way of organizing our memory and

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tucking things away until either we're ready to deal with it

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or if we're done dealing with it, and we just file that away as, like,

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a done file. Put that in the done pile. Right? Like, we're all

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done with that. We don't need to revisit that memory. Oh, no, we need to

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revisit this. We're going to put this in the still to process pile.

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So. Yeah, I'm surprised. Yeah, that's quite interesting. I would

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have thought perhaps there's some trauma. Maybe there is, but

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traumatic reason that it would stand out, or perhaps it wouldn't stand out,

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and you would forget it for that same reason. I don't know a whole lot

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about the brain, but I know for me there were several key moments that I

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do remember. Some poorly and some, like,

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for in a positive manner. So, yeah, I definitely have a bit of a

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different experience there than you when it comes to that. Anyway.

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Yeah. Well, before we go, I want to

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hear what is some advice

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you would like to give to heart patients listening that

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really served you well. And what do you wish you had

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known going into your surgery? Hmm. Yeah. Well, I

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guess I just assumed and hoped that it was gonna be fine.

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I guess there's no way to actually know it was gonna be fine,

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but, yeah, I mean, my. My best advice, and I don't. I don't

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know, this feels kind of generic or like, it's not that useful,

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but it's the best thing that I could say, is just that.

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Yeah. Except that it is gonna be fine. That's all I could. That's all I

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could do is know that it is gonna be okay and just handle it one

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day at a time. So it seems daunting. It seems scary. You don't

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feel very good for. For weeks and weeks after the fact,

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but just have that hope and that reassurance that it's going to be okay.

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Like, yes, I went through that. As I said, it's hard for me to kind

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of reflect and remember that I was that guy who could barely walk

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a few steps down the hallway, or I had had my family help with my.

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My dog because I couldn't move. I was just lying on the couch, you know,

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letting my scar heal, and I. I'm fine. That was just a moment in

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time. It took, whatever, three, six months, and it was. It was

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rough. But after that, I was up. I was okay. And I've been living a

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very, very great life ever since. You know, I don't really notice that there's

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anything ever, ever was done with my heart, aside from the medication.

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There's a few minor things but I'm just glad to be here and that was

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just a moment in my life. And for anyone else

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that's facing something like that, I certainly hope. I think it will be the same.

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You know, you'll, you'll be fine, you'll get through it and life goes

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on. I could not agree more. I endorse your message.

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I appreciate your approval. It means a lot.

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Well, Joel, thank you so much for your time

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today. And how can listeners find you if they need

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to reach out for more inspiration? Sure, yeah.

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Publicly contact me through my business. That's the great

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we're on Instagram, LinkedIn. However you, however you want to communicate is fine, but

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the easiest thing for me to say is the website

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eastcoaststudio.com dot all the social media there.

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That's all me on there. So you're not going to get my assistant or anything

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like that. You can communicate right with me and we can chat further about

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whatever I can help with in terms of the heart surgery life.

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Perfect. Well, thanks for your time today, Joel, and I'll have everything

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in the show notes as well. So we wish you well in Calgary

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and keep kicking ass. Thank you boots. I appreciate you as

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well and everything you're doing. Hey heart buddies,

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thank you for sharing a few beats of your day with me today.

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Please be sure to follow or subscribe to this podcast

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wherever you are listening. Also be sure to

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share with a friend who will value what we discussed.

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Additionally, I love your feedback. It is so

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encouraging when I hear from you listeners and it

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helps me continue to put out good content

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that I know you want to hear. So be sure to

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drop me an

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email@bootsheheartchamberpodcast.com.

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again, I am your host bootsnighton and

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thanks for listening. Be sure to tune in next

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Tuesday for another episode on open

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heart Surgery with Boots.

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About the Podcast

Open Heart Surgery with Boots
A podcast for heart patients by a heart patient
Formerly called The Heart Chamber Podcast, Open Heart Surgery with Boots airs every Tuesday for conversations on open-heart surgery from the patient perspective. Boots Knighton explores the physical, emotional, mental, and spiritual experiences of surgery with fellow heart patients and health care providers. This podcast aims to help patients feel less overwhelmed so you can get on with living your best life after surgery. You not only deserve to survive open-heart surgery, you deserve to THRIVE!
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