Episode 69

full
Published on:

24th Sep 2024

Biotoxin Illness: The Urgent Threat to Your Heart and How to Protect It

Host, Boots Knighton, interviews Dr. Robin Thompson, a naturopathic doctor specializing in biotoxin illness. They discuss the major health obstacles faced by heart patients, including exposure to mold and other biotoxins in water-damaged buildings. Robin explains how these toxins infiltrate the body, causing inflammation and a range of symptoms like chronic fatigue and GI issues. She shares practical advice for detecting and treating biotoxin-related illnesses, recommending resources like SurvivingMold.com and ISEAI. Boots shares her own health journey, highlighting profound improvements under Robin's care. They stress the importance of holistic, personalized treatment for long-term recovery.

About Dr. Robin Thomson

Dr. Robin Thomson is a naturopathic physician who has been practicing medicine since 2005. She provides primary care as well as expert care for biotoxin illnesses like tick-borne infections and mold illness, as well as mental health disorders like anxiety and depression, and symptom relief for chronic COVID sufferers. 

Dr. Thomson graduated from the National College of Naturopathic Medicine in Portland, Oregon. In 2008 she received a grant from the Turn the Corner Foundation to study Lyme and other tick-borne disease treatments with the highly acclaimed Dr. Bernard Raxlen in New York City, and then moved to Montana in January 2009. In 2013 she gained further training in environmental illnesses such as mold toxicity, and completed the Dr. Richard Shoemaker Certification in Biotoxin Illnesses. And in 2020, delayed due to the pandemic, she finally received certification from the Walsh Institute in the natural treatment of mental illnesses.

Affiliations:

  • ILADS (the International Lyme and Associated Diseases Society), the
  • AANP (American Association of Naturopathic Physicians), the
  • MANP (Montana Association of Naturopathic Physicians), 
  • OANP (Oregon Association of Naturopathic Physicians),
  • and
  • ISEAI (the International Society for Environmentally Acquired Illness), where she is a Diplomate member. 

 Dr. Thomson is licensed as a naturopathic physician in the states of Montana and Oregon.

Join the Newsletter for almost weekly content for this podcast and other heart related news.

Join the Patreon Community! The Joyful Beat zoom group is where you'll find connection and hope that you aren't alone in your journey.

If you just want to support the show as a one-time gift (thank you), go here.

**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

How to connect with Boots

Email: Boots@theheartchamberpodcast.com

Instagram: @openheartsurgerywithboots or @boots.knighton

LinkedIn: linkedin.com/in/boots-knighton

Boots Knighton

If you enjoyed this episode, take a minute and share it with someone you know who will find value in it as well. You can share directly from this platform or send them to:

Open Heart Surgery with Boots

Transcript
Speaker:

So you breathe that in, or you can even absorb it through your

Speaker:

skin if you touch it. So those go into your

Speaker:

system, into your bloodstream. They're really small,

Speaker:

so they can cross the capillary

Speaker:

wall. They can get into the brain through the blood brain barrier, which

Speaker:

normally keeps out things that are too big.

Speaker:

So when that happens, it sets off

Speaker:

a line of inflammation from

Speaker:

cytokine production. And cytokines are, they're proteins that

Speaker:

affect inflammation and affect the immune system and. Things

Speaker:

welcome to open heart surgery with Boots, a

Speaker:

podcast for heart patients by me, a heart

Speaker:

patient. Join me as I take you on a journey through the

Speaker:

intricacies of the human heart, revealing the

Speaker:

triumphs and challenges of those who

Speaker:

undergo the life changing event of heart

Speaker:

surgery. We're not just exploring medical procedures,

Speaker:

we're delving into the human experience.

Speaker:

Be sure you hit subscribe and also

Speaker:

leave a review. That means the world to

Speaker:

me, and I read every single one. Also, if you

Speaker:

have a story to share or want to hear something that I haven't

Speaker:

covered on this program, you can send me an email which is

Speaker:

linked in the show notes. But without further delay, let's

Speaker:

get to this week's episode. Welcome to

Speaker:

another episode of Open Heart Surgery with Boots. I am your

Speaker:

host, Boots Knighton, coming at

Speaker:

you from Victor, Idaho, your fellow heart buddy.

Speaker:

Thanks for coming along with me today. If you're just finding this

Speaker:

podcast, I am so glad that you have. If you are

Speaker:

looking to support this podcast, please consider

Speaker:

joining our Patreon community. I've named it the joyful

Speaker:

beat. We are just getting going and we are going to

Speaker:

start meeting on Zoom, and I'm building a community of heart

Speaker:

patients there around the world who are looking

Speaker:

for a little bit more support than maybe what you might be getting at

Speaker:

home. So I'm recording this in September of

Speaker:

2024 with Doctor Robin Thompson,

Speaker:

who has been such a pivotal part of my

Speaker:

life for the past year. And doctor

Speaker:

Thompson lives up in Bozeman, Montana. That's where she

Speaker:

practices. And I have invited her on because this

Speaker:

is National Mold awareness

Speaker:

Month. Who knew there was such a thing? I think there's an

Speaker:

awareness month for just about everything out there. And

Speaker:

Doctor Thompson is a naturopath, a naturopathic

Speaker:

doctor who specializes in

Speaker:

biotoxin illness, amongst a variety of other things

Speaker:

as well. So, Doctor Thompson, thank you so much for

Speaker:

agreeing to step out of your out of the

Speaker:

doctor patient role with me today and being willing to come on

Speaker:

the podcast. Yeah, thanks for having me. I'm really happy to be

Speaker:

here. Love talking to you. So tell us about

Speaker:

your credentials. I mean, you help people with

Speaker:

so many different things. It's just fascinating what you do in your

Speaker:

practice every day with Mads, your nurse, and

Speaker:

Ashlyn, the office manager. You three are

Speaker:

a dynamic duo up there in Bozeman. I have

Speaker:

a great team, and I think sometimes people look

Speaker:

at my specialty areas and they think

Speaker:

that they're kind of, like, disparate. But there's a lot of

Speaker:

overlap. I do a lot of mental health stuff that overlaps

Speaker:

with maltex and illness and other biotechs and illnesses, the

Speaker:

cardiovascular stuff, obviously, there's a huge impact

Speaker:

there, but hormones and weight and all that

Speaker:

stuff, because biotoxin illness is a multi system,

Speaker:

multi symptom illness, and it can affect any part of the body. So

Speaker:

there are a lot of different things that I have to know

Speaker:

how to manage, I guess. Yeah. Which is fascinating to me,

Speaker:

because as a heart patient, and I hit my

Speaker:

head a few years prior to that, recently, I broke my leg,

Speaker:

and I have been in different

Speaker:

silos of the medical system and,

Speaker:

or should I say medical industry, even. And it's

Speaker:

so everyone is so pigeonholed into

Speaker:

their little areas, and so to meet you

Speaker:

and to see and witness everything you have to think

Speaker:

about when it comes to biotoxin illness, it

Speaker:

just is impressive to me, because, like, my

Speaker:

orthopedic surgeon, he was just like, I am just worried about your fibula and

Speaker:

tibia. And then my heart, my

Speaker:

cardiologist, I mean, the heart is really complex, and that is a lot to think

Speaker:

about. But, yeah, everyone's just. And then the neurologist is just thinking

Speaker:

about the brain and where you're like, I have to think about everything. It's

Speaker:

just amazing to me that you can do that with the grace

Speaker:

and the confidence and the knowledge that you. And

Speaker:

you're just so approachable, and there's no ego, and I just

Speaker:

really appreciate that. It's just a breath of fresh air.

Speaker:

Well, you know, being trained as a naturopathic physician, that's. That

Speaker:

is how we are trained. We are holistic. And yes, I have a

Speaker:

specialty area of biotechs and illness, but that

Speaker:

illness encompasses so many different body systems

Speaker:

and issues. And I don't pretend to be an

Speaker:

expert. I'm not a cardiologist. Right.

Speaker:

I refer out quite often for things, but I have to have a

Speaker:

basic understanding. I do have to treat a lot of GI things

Speaker:

and nutrient things that come up with. With this particular

Speaker:

set of situations with inflammation that

Speaker:

this causes. Right, right. Which is a great segue

Speaker:

into how I found you, because

Speaker:

I was. After I had my heart surgery,

Speaker:

my mom died nine weeks later, and then I had to clean her

Speaker:

house out. Twelve weeks post open heart surgery by

Speaker:

myself. My husband wasn't able to help. And that's okay. I have no

Speaker:

siblings, but, you know, I was, like, in it, in her house.

Speaker:

And unknowingly, I was

Speaker:

exposed to a variety of things in her house. Chemicals,

Speaker:

mold, all the things. And I was in obviously, in a really vulnerable

Speaker:

state for the next year. I proceeded to gain

Speaker:

weight, started having. I was good as new. After

Speaker:

my congenital defect was fixed. Well,

Speaker:

almost as good as new. But then I started slipping

Speaker:

backwards, and my cardiologist was stumped.

Speaker:

She ran all kinds of tests. I ended up going down to University of Utah.

Speaker:

Had another heart cath. I mean, it was awful. And they were like, we don't

Speaker:

know what's wrong. So they sent me to the Mayo clinic. The Mayo

Speaker:

clinic, after nine days of tests, were like, we don't know what's

Speaker:

wrong. And then I find myself in the parking

Speaker:

lot at the local grocery store and run into a

Speaker:

friend who. Who had been working with you. And I told her

Speaker:

what was going on, and she said, this sounds a lot like

Speaker:

biotoxin. You should go talk to Doctor Robin Thompson.

Speaker:

And I had already done some tests with, like, a

Speaker:

local dietitian who discovered it had an insane

Speaker:

amount of inflammation. And I took that to my

Speaker:

cardiologist, and she was like, I don't know what any of this means.

Speaker:

My general practitioner didn't know what it meant. And

Speaker:

lo and behold, I landed in your office, you know, a

Speaker:

June ago, and that's where our journey

Speaker:

started. And I about pulled my hair out

Speaker:

prior to coming to see you, and no one ever thought,

Speaker:

you know, it could be biotoxin exposure. And I've

Speaker:

worked through that, that frustration.

Speaker:

So I'm. I can tell this story more calmly,

Speaker:

but since I've been working with you, it is amazing. Like, it's. It's

Speaker:

been a slog, because my inflammation markers were, which we'll talk about

Speaker:

in a second, were so insanely high. Like, I was really

Speaker:

achieving there. I would have done great on the sats, my

Speaker:

inflammation scores, but I. I

Speaker:

cannot believe how much better I feel cardiovascular

Speaker:

wise by just working on this inflammation. And

Speaker:

so I thought we could take this first part now that I've

Speaker:

given listeners a bit of a backstory there and just talk

Speaker:

about what we saw at the beginning

Speaker:

and how you just see people in general when they walk into your office.

Speaker:

With trends and how that shows up cardiovascularly, since this is a heart

Speaker:

podcast and then how we treated it.

Speaker:

But actually, before we do that, let me take a step back, Robin,

Speaker:

why should we care about biotoxin illness?

Speaker:

Well, I think we should care because a lot of people walk around with it

Speaker:

and don't realize they have it. Case in point, right?

Speaker:

So, you know, if you think about over 50% of

Speaker:

buildings are water damaged in the United States, just as

Speaker:

one type of biotoxin, there are other types of biotoxins that

Speaker:

also affect people. But we're talking about mold today, I think. So.

Speaker:

You know, if you think about the number of people that have

Speaker:

exposure to water damaged buildings, it's pretty much everybody at some

Speaker:

point or another. And then at least

Speaker:

25%, we actually think now it's

Speaker:

probably closer to 40% of people have a genetic issue

Speaker:

with tagging and removing little, tiny biotoxins. And so

Speaker:

if you can't get rid of them, if you breathe them in, in a water

Speaker:

damaged building, from a water damaged building, for example, you can't get

Speaker:

rid of them. They just circulate through your whole body and cause I

Speaker:

inflammation in different areas and cause a lot of issues, you

Speaker:

know, certainly cardiovascularly, but also with the kidney and with the

Speaker:

brain and with the lungs and, you know, all of,

Speaker:

all of the things. So, you know, it's a large number of people

Speaker:

that walk around with. If you just think about the number of

Speaker:

people that have chronic fatigue and fibromyalgia, there's probably

Speaker:

a large percentage of those people that have biotoxin

Speaker:

illness of some type or another, partly because

Speaker:

those symptoms are so broad. And usually with

Speaker:

chronic fatigue and fibromyalgia, most of those people

Speaker:

also have some degree of GI issues and some degree of mental

Speaker:

health issues and some degree of, you know, other things that

Speaker:

once you have that multi system, multi symptom illness picture,

Speaker:

you, you know, you have to rule out biotoxin illness

Speaker:

because it's one of the only things that can cause that. It's not the

Speaker:

only thing, but it's more than we realize, most

Speaker:

likely. And if you have, especially with, you

Speaker:

know, the serious side, if you have some of

Speaker:

those manifestations, and everybody manifests differently, of course, but if you have

Speaker:

some of those manifestations, I mean, it can kill you. So, yeah, I think

Speaker:

we should care. Wow. I guess

Speaker:

big picture. I don't understand why.

Speaker:

Well, I mean, you and I have talked about it one on one, but just

Speaker:

having a more general conversation about it now. Why

Speaker:

is the medical industry

Speaker:

not cluing into this more, because it seems

Speaker:

like a five alarm fire to me.

Speaker:

Well, I mean, it's just not part of their curriculum yet,

Speaker:

you know, I mean, that's the main answer. There's not

Speaker:

really any pharmaceutical,

Speaker:

you know, special interest groups that are going to profit off of it

Speaker:

either. And as a matter of fact, it costs people

Speaker:

money, because when you're talking about illness, that's one thing, but when you're

Speaker:

talking about fixing buildings, that's a whole other ball of axe, and

Speaker:

kind of. Nobody wants to get involved in that. So I think there are

Speaker:

some political things going on. I also think it's just, you

Speaker:

know, the medical community, conventional medical community, is very slow,

Speaker:

very slow to learn new things and

Speaker:

become apprised of them. Lyme disease

Speaker:

is another, you know, facet of biotoxin

Speaker:

illness that really. I mean, we're still a long

Speaker:

way from having conventional medicine on board with that,

Speaker:

but it's a lot better than it was ten years ago. Ten years ago, I

Speaker:

was told, even at the Mayo Clinic, which the

Speaker:

Minnesota location of the hospital of that

Speaker:

is in a Lyme endemic area, and ten years ago, they were telling me that

Speaker:

Lyme disease didn't exist. So that's not the case now.

Speaker:

So I think it's just a matter of time for people to

Speaker:

become aware of the research. Europe, there's a ton

Speaker:

more acceptance of this issue, and tick

Speaker:

borne illness as well. They seem to be a little faster

Speaker:

to be able to grasp onto things than the United

Speaker:

States. Well, I'm thankful to you that you are

Speaker:

leading the charge. I mean, you're not. There's not

Speaker:

many doctors in the United States that are able to

Speaker:

treat patients like me with the level of care you're able to.

Speaker:

So I thank you. So now, drilling down

Speaker:

to me and how, when I walked into your

Speaker:

office, my inflammation markers were

Speaker:

impressive. I would love for you to walk us through,

Speaker:

like, what you look at, and you can use me as an example if

Speaker:

you want, or just stay general. But all the different types of inflammation markers

Speaker:

and what each of those, you give a great sheet explaining

Speaker:

what each of those are. It's like, such a great education on, like, how

Speaker:

all these different things that you measure are important in the body and what

Speaker:

it. What it does for the body, if it's, like, at the right levels.

Speaker:

So can you just briefly walk us through what you look for?

Speaker:

Yeah. So there are some kind of strange,

Speaker:

unfamiliar to most people, inflammatory markers that

Speaker:

we test. And if you think about. So what happens with biotoxin

Speaker:

illness is let's say you're in a water damaged

Speaker:

building. You either breathe in those chemicals

Speaker:

from components of mold and bacteria and

Speaker:

fungi and mouse droppings. I mean, it all kind of mixes together

Speaker:

and gets airborne. So you breathe that in, or you can even

Speaker:

absorb it through your skin if you touch it. So those go

Speaker:

into your system, into your bloodstream. They're really small,

Speaker:

so they can cross the capillary wall,

Speaker:

they can get into the brain through the blood brain barrier, which normally

Speaker:

keeps out things that are too big. So when that

Speaker:

happens, it sets off a

Speaker:

line of inflammation from cytokine production. And

Speaker:

cytokines are, they're proteins that affect inflammation,

Speaker:

can affect the immune system and things. So once those side, and I

Speaker:

think you came in with a cytokine test, even that was like eleven

Speaker:

out of 15 or something were like crazy high. And I don't

Speaker:

necessarily test those cytokines, but that gave me information that, yeah, there's

Speaker:

something going on that's in your cytokines. So we

Speaker:

tested a bunch of things. One of the things that was really elevated in

Speaker:

your case was something called matrix metalloproteinase nine,

Speaker:

which can be elevated post heart attack and

Speaker:

things like that, but is also elevated in biotoxin

Speaker:

illness. And it actually is a feed forward system. So

Speaker:

MMP nine can drive more

Speaker:

inflammation, and it can bind

Speaker:

to a substance called pai one, which

Speaker:

causes clot formation. So that's one of the ways

Speaker:

that end result long term. If something isn't

Speaker:

taken care of, it can result in a clot and possibly an Mi

Speaker:

or something like that. There are other things that

Speaker:

the immune system can be impacted by these cytokines too.

Speaker:

And sometimes autoimmune

Speaker:

things can be driven. There is a

Speaker:

substance called cardiolipin that you can develop antibodies

Speaker:

to with biotoxin illness, and that also

Speaker:

can drive some clotting formation. Many other

Speaker:

things. Sometimes those cytokines will

Speaker:

impact other inflammatory markers that we tested. In

Speaker:

your case, youre TGF beta one is

Speaker:

another marker. I don't know if I need to say all these names, but that

Speaker:

causes lung tissue remodeling, and it can interfere

Speaker:

with oxygen absorption through the lung and cause shortness of breath and fatigue

Speaker:

and all sorts of things. But anything, you know, on either side of the heart,

Speaker:

like anything that affects the lungs, can possibly affect the heart,

Speaker:

anything that affects the kidneys, which is another thing that happens with

Speaker:

these inflammatory cytokines, driving inflammation.

Speaker:

So antidiuretic hormone in the

Speaker:

pituitary can be lowered. That causes a lot

Speaker:

of, basically, it makes your blood really thick because it

Speaker:

causes an exodus of free water

Speaker:

that you should be hanging onto, but you can't hang on to if you have

Speaker:

a lowered adh. And so if you have thicker blood,

Speaker:

obviously it's not going to be carrying oxygen as

Speaker:

well. It's also going to be another risk factor for

Speaker:

clotting. So. And it can look like breathlessness,

Speaker:

which to a heart patient is scary, and to a cardiologist is

Speaker:

scary. Yes. Which is what I was experiencing a lot

Speaker:

of. Yes. And the other thing, you know, a lot of people

Speaker:

complain about weight gain with biotoxin

Speaker:

illness. There's a lot of interaction with leptin

Speaker:

and leptin resistance and leptin receptors, and it can

Speaker:

cause really rapid weight gain not only due

Speaker:

to fluid, but actual, like, the fat receptors are being

Speaker:

impacted. And, of course, that can impact the heart, too,

Speaker:

you know, long term with diabetes and hyperlipidemia and

Speaker:

all sorts of things like that, atherosclerosis and whatnot. And I

Speaker:

gained 20 pounds. Yeah. And that's been, like,

Speaker:

not. It's not normal for you and it's not okay. No.

Speaker:

And it doesn't respond to diet and exercise. No.

Speaker:

Like, nothing budged. Yeah. Yeah.

Speaker:

So it has to be fixed on the cellular level and the brain level.

Speaker:

One other thing you tested me for

Speaker:

is the genetic testing to see if I had

Speaker:

the haplotypes, right? Is that how you say it? Haplotypes?

Speaker:

Yep. Yep. They're gene combinations. Yep, yep. And I have two.

Speaker:

Mm hmm. You got lucky.

Speaker:

Yeah. I'll have more than one. Yeah. Yeah. I'm winning at a lot of

Speaker:

things in my body, but, yeah.

Speaker:

Yes. And so, you know, I didn't know that. I mean,

Speaker:

there's. There's no way to know unless you do the testing. And it was like

Speaker:

this really tough storm of a lot of

Speaker:

stress. The heart surgery, mom

Speaker:

diese. I mean, my defenses were down,

Speaker:

and then I don't have the genetics to back me up.

Speaker:

Right. And that's usually, you know, a typical

Speaker:

story, because you can go many, many

Speaker:

years without reacting to mold when you have susceptibility.

Speaker:

And oftentimes I hear, oh, I got into a car

Speaker:

accident. I had surgery. I had a baby. I got

Speaker:

Covid. And then all heck breaks loose.

Speaker:

So it does seem like there's often a precipitating

Speaker:

event. It's not just a random, you know,

Speaker:

like, you used to be able to handle it.

Speaker:

Let's say it didn't used to bother you. When you were a child living

Speaker:

in South Carolina, you were fine.

Speaker:

Yeah, presumably. Presumably, yeah. But you

Speaker:

know, looking back at my life, like, even prior to

Speaker:

heart surgery, when I hit my head in

Speaker:

2018, when I sustained that really bad concussion,

Speaker:

then I started having the gut issues and I noticed I would have

Speaker:

a rash. And like, all there was like these little signs

Speaker:

that something wasn't right in my body. And so I also wonder

Speaker:

if, like, I went in to my heart journey,

Speaker:

not in the best of health to begin with.

Speaker:

Right. And, yeah, I mean, 2018 with

Speaker:

the head injury, if that's what precipitated it and you didn't really realize

Speaker:

it, I mean, we could theorize all day long, but it

Speaker:

could be that that is what started that

Speaker:

inflammatory cascade. Yeah. And

Speaker:

I also just want to, before we continue on the

Speaker:

inflammatory marker explanation, like, I'm sharing all this

Speaker:

with my listeners because I know every

Speaker:

heart patient I've had the privilege of interviewing or meeting,

Speaker:

none of us get to have our heart journey in

Speaker:

a vacuum. Life keeps on lifeing. Other

Speaker:

things happen. We get sick, we hit our heads, we break our

Speaker:

legs, things happen in addition to having heart

Speaker:

surgery. And so it just is this extra

Speaker:

added noise to what's already really loud and

Speaker:

hard and then to have

Speaker:

biotoxin exposure and it just

Speaker:

adds insult to injury. And

Speaker:

it's like something I didn't know I needed to be concerned about

Speaker:

this. And so I'm excited that we're doing this today because

Speaker:

I want other heart patients to know that it is

Speaker:

something we all do need to think about when we are in our

Speaker:

homes, in buildings, being mindful of

Speaker:

what we are exposed to. Hey, listeners, if there's a weird

Speaker:

delay there, we lost connection. Doctor

Speaker:

Thompson was talking about markons. I tried to

Speaker:

find a good stopping place

Speaker:

and she was talking about how kind of like

Speaker:

the downstream effects of Markons and

Speaker:

how it's like right there at the pituitary land where it

Speaker:

collects in the nasal passages. And what's interesting

Speaker:

is I tested positive for that. That's where Doctor Thompson started

Speaker:

with me in my treatment. And it took quite a while

Speaker:

to get it to go away. And what I

Speaker:

noticed is I no longer have sinus

Speaker:

infections, and if I get sick, it's not nearly as

Speaker:

severe. And so it's worth

Speaker:

pursuing and figuring out if you have it or

Speaker:

not. Now, Doctor Thompson, doctors regularly

Speaker:

test for mark ons. I mean, I had never heard about it until I met

Speaker:

you. So what's up with that? Only doctors

Speaker:

that treat biotoxin illness because a lot

Speaker:

of people walk around with Mark hounds and it doesn't impact them. And so if

Speaker:

it's not impacting you and causing increased low

Speaker:

msh, does it matter? No.

Speaker:

And again, it's just, it's a matter of the curriculum in medical

Speaker:

school. It doesn't cover this stuff. This is stuff that we have.

Speaker:

Even I had to learn after graduating from medical school.

Speaker:

Okay. Wow. Okay.

Speaker:

I hope a lot of doctors will listen to this episode.

Speaker:

So, like I was saying, we started with markons, and I

Speaker:

remember you telling me, you can't do the rest of the treatment until the

Speaker:

mark ons is gone. There's a step by step

Speaker:

way to treat someone like myself. And so that's

Speaker:

step one. Well, step one is

Speaker:

actually getting out of mold exposure. Oh, true. That's

Speaker:

true. Yep. Yeah. Good

Speaker:

point. Because what's the point if you're going to continue to live in it, right?

Speaker:

So if you're putting it in, and step two

Speaker:

is to take a binder, especially for people that

Speaker:

have the genetic haplotypes, the genetic

Speaker:

combinations where they can't get rid of biotoxins on their

Speaker:

own, they need to take a binder. So out of

Speaker:

exposure, one, take a binder, two

Speaker:

steps. Three, if you have markons, you have to treat

Speaker:

that. It's not an infection per se, but we use

Speaker:

antimicrobial things to treat it. And then

Speaker:

you can get your matrix metalloproteinase

Speaker:

down. Ideally, in your case,

Speaker:

that didn't happen, but there

Speaker:

is precedent for treating the next

Speaker:

step of VIP if you pass the VIP trial

Speaker:

with that vip nasal spray, since you were low at the

Speaker:

beginning, I knew that you were a good candidate for that

Speaker:

treatment. And VIP does so many things in the body

Speaker:

in terms of lowering inflammation,

Speaker:

adjusting your genes so that they don't produce so

Speaker:

many cytokines. So that also works to lower

Speaker:

inflammation. It improves your immune system, again,

Speaker:

because it lowers cytokine levels on the gene level,

Speaker:

and it improves oxygenation. So it helps

Speaker:

to normalize tgf beta one the rest of the

Speaker:

way and raise msh the rest of the

Speaker:

way so that you are back to

Speaker:

baseline. So ideally, if all of your

Speaker:

markers, all of your inflammatory markers are back to where they were

Speaker:

before you developed biotoxin illness, it's kind of like you're a

Speaker:

kid again, and you can tolerate a certain

Speaker:

amount of mold, etcetera,

Speaker:

once more, without going down that inflammatory cascade.

Speaker:

And I mean, obviously, at that point, your symptoms

Speaker:

are vastly improved or

Speaker:

resolved, right. Which I'm starting to

Speaker:

experience. I mean, I'm not out of the woods, but because I've been

Speaker:

on VIP for two or three months now. And

Speaker:

you said it's like at least six months, right? At

Speaker:

least. And because we weren't able to get your MMP nine

Speaker:

down all the way, probably because of cardiovascular

Speaker:

issues, you know, who knows how long it's going to take. We just have

Speaker:

to see there is a step by step treatment,

Speaker:

but it's always individual.

Speaker:

There are no two cases that are like. So I

Speaker:

can give you an estimate of how long I think it's going to take, but

Speaker:

we don't really know till we know,

Speaker:

unfortunately. And, you know, as I'm learning,

Speaker:

most things when it comes to a

Speaker:

major health issue take

Speaker:

time, like longer than our egos and our

Speaker:

calendars would allow. Right. Would like to

Speaker:

allow. So there are some other gene tests

Speaker:

that we sometimes do for these cases, and it's

Speaker:

100 pages of genes that can

Speaker:

be affected by this chronic

Speaker:

condition. If you think about how many genes are

Speaker:

involved and how many different body systems are involved and

Speaker:

unraveling all of that and having things work

Speaker:

in concert together, I mean, it's pretty

Speaker:

amazing. And to expect that to happen in a matter of weeks

Speaker:

or months is just, you know, very unreasonable.

Speaker:

Right. Yeah. And there's a grieving process I had

Speaker:

to go through when you told me that because I was like, but I've already

Speaker:

had, like, all these dumpster fires, and now I had this next dumpster

Speaker:

fire. It was a lot to accept and take

Speaker:

on, but the consequence of not dealing

Speaker:

with it is so great and dire that it was

Speaker:

either really suffer or just push

Speaker:

my sleeves up, get to work, and do what you told me to

Speaker:

do. Yeah. And that's the way you

Speaker:

have to approach it if you want to have success.

Speaker:

It is a marathon, except it's a marathon without

Speaker:

a finish line. So it sucks more. But

Speaker:

it is an arduous process, and it's

Speaker:

complex in that it's not only doing the

Speaker:

steps medically, but also, like I said before, step

Speaker:

one is out of exposure, and that can be really tough for

Speaker:

people. Right. Especially if they live in certain parts of the country. Like,

Speaker:

luckily, where I am, it's a little more dry. But

Speaker:

what are some of the hotspots in the United States States that

Speaker:

would have mold? Well, I mean, where you grew up. So the

Speaker:

east coast, especially along the eastern seaboard,

Speaker:

particularly tricky because there are several

Speaker:

different biotoxin illnesses in those areas

Speaker:

at once. Not only the mold, but also

Speaker:

tick borne illness is pretty prevalent there. There are

Speaker:

certain types of dinoflagellate blooms and

Speaker:

algal blooms that happen on the eastern seaboard. That can make people

Speaker:

really sick in some of the same ways as well. Other than that, I

Speaker:

mean, the Pacific Northwest, I mean, anywhere on the coast, is

Speaker:

potentially especially prone to

Speaker:

maltoxin illness. But if you have a building

Speaker:

and it has indoor plumbing, you're always at risk no matter where

Speaker:

you live. So it's kind of. I have a

Speaker:

ton of patients in Arizona. You know,

Speaker:

Montana is pretty dry, too, and there's a lot of water damage,

Speaker:

buildings here. So if there's not really any one place, if

Speaker:

there was, like, I would tell everybody to go there.

Speaker:

Yeah. Because it's a real pain in the neck dealing with this. I can speak

Speaker:

from experience. Okay, so someone

Speaker:

listening to you anywhere in the, in the United States or the world,

Speaker:

like, if they are concerned today, after listening to this

Speaker:

episode, where do they start? Because you are in

Speaker:

Bozeman, Montana. How do they

Speaker:

find someone that can help them? I mean, obviously you work with

Speaker:

patients long distance, but if that's just not an option for

Speaker:

them, like, how does someone even start with this

Speaker:

journey? Well, I would recommend if you have

Speaker:

symptoms that you think might be related to a biotoxin illness, go to

Speaker:

survivingmould calm and take their visual

Speaker:

contrast sensitivity test, which is a measure of

Speaker:

inflammation in your brain pressing on your optic nerve. Basically,

Speaker:

it's a screening test, so not everybody will have a

Speaker:

positive on that, but it also takes you through

Speaker:

a symptom checklist, which is handy.

Speaker:

Many people will have a positive on the VC's

Speaker:

test. And so if that happens, there's really

Speaker:

nothing else that can cause visual contrast

Speaker:

sensitivity deficits except for biotoxin

Speaker:

illness. As a matter of fact, that test was used

Speaker:

after Hurricane Katrina in Louisiana in 2005 to

Speaker:

screen people for maltoxin illness. So if you think

Speaker:

you have an issue with biotoxin, and

Speaker:

especially if you don't have, if you

Speaker:

fail, I like to say you have a positive, but technically it says

Speaker:

fail on the test. You have a positive vc's test,

Speaker:

then you can go to their surviving mold doctor

Speaker:

list. There's also the ici.

Speaker:

Iseai.com

Speaker:

or.org is another organization I belong

Speaker:

to that has physicians listed around the

Speaker:

country. So you might be able to find somebody closer to you.

Speaker:

There aren't a ton of us. I was number three back in

Speaker:

2013, doctor certified in this

Speaker:

illness treatment system, and

Speaker:

we have a few hundred now, which is great, but it's still

Speaker:

not enough for everybody that needs us, so.

Speaker:

Right, you're full. Right. Like you,

Speaker:

I still take. I still, yeah, I still take new clients, but

Speaker:

yeah, it's we're busy.

Speaker:

Yes, put it that way, yes. And yet,

Speaker:

even though you're busy, you always show up just ready to help me

Speaker:

and meet me with grace. And

Speaker:

it has made what has been such a hard

Speaker:

road a little land a little easier. Didn't

Speaker:

help that I broke my leg in the middle of it all.

Speaker:

You had a few things. You had a few things,

Speaker:

but at. Least I was bringing my inflammation down, which helps the healing

Speaker:

of bones, right? Certainly, yeah. Thank you

Speaker:

so much for this conversation today. And if listeners

Speaker:

do want to find you, I'll obviously have it in the show notes. Show

Speaker:

notes. But I always like for practitioners to also

Speaker:

verbalize best ways to get in. Touch the best way to get in touch

Speaker:

with me is to go to my website, which is

Speaker:

www.trilliumclinic.net.

Speaker:

so trillium clinic.net

Speaker:

dot trillium is a flower,

Speaker:

a beautiful one. A beautiful flower. And it has a lot of medicinal

Speaker:

purposes to it. And we have a chatbot

Speaker:

and that's mostly how we communicate with our new patients or people that

Speaker:

have questions. Yeah, yeah. Great. Well,

Speaker:

again, you're busy. It's the end of the day for you

Speaker:

when we're recording, and so I just really want to thank you

Speaker:

for helping future listeners and

Speaker:

happy mold awareness month to you. Yeah, thank you.

Speaker:

Thanks for having me. It was fun.

Speaker:

Hey heart buddies, thank you for sharing a few beats of your

Speaker:

day with me today. Please be sure to follow or

Speaker:

subscribe to this podcast wherever you are listening.

Speaker:

Also be sure to share with a friend who will

Speaker:

value what we discussed. Additionally, I love

Speaker:

your feedback. It is so encouraging when I hear from

Speaker:

you listeners and it helps me continue

Speaker:

to put out good content that I know you want to hear.

Speaker:

So be sure to drop me an

Speaker:

email@bootsheheartchamberpodcast.com.

Speaker:

again, I am your host, boots Knighton and

Speaker:

thanks for listening. Be sure to tune in next

Speaker:

Tuesday for another episode on open

Speaker:

heart surgery with Boots.

SUPPORT THE HEART CHAMBER

We rely on the generous donations of listeners like you to bring inspiration, hope and healing every week. Thank you for contributing to our cause.
DONATE HERE
B
Bill W $50
Keep up helping heart warriors!
A
Anonymous $100
Show artwork for Open Heart Surgery with Boots

About the Podcast

Open Heart Surgery with Boots
A podcast for heart patients by a heart patient
Formerly called The Heart Chamber Podcast, Open Heart Surgery with Boots airs every Tuesday for conversations on open-heart surgery from the patient perspective. Boots Knighton explores the physical, emotional, mental, and spiritual experiences of surgery with fellow heart patients and health care providers. This podcast aims to help patients feel less overwhelmed so you can get on with living your best life after surgery. You not only deserve to survive open-heart surgery, you deserve to THRIVE!
Support This Show