Episode 90

full
Published on:

11th Mar 2025

Cardiac Success: Dawn Overcomes Sinus of Valsalva Aneurysm and Bicuspid Aortic Valve

Hey Heart Buddies! A heart murmur, congenital aneurysm of sinus of Valsalva, ruptured sinus of Valsalva into right ventricle, bicuspid aortic valve, persistent left superior vena cava and pacemaker... all in one extraordinary heart...

This week, I talk with my friend, Dawn Anderson, about her extraordinary heart health journey. Living in Adrian, Minnesota, Dawn shares her experience of discovering and surviving a rare aortic aneurysm and bicuspid aortic valve at age 41. Despite facing multiple challenges, including depression and the stress of losing her job, Dawn emphasizes the importance of self-advocacy and seeking support. Her story highlights the necessity of listening to your body and staying informed about heart health. Dawn and I met through WomenHeart which is a non-profit providing education and support to female heart disease patients. Don't forget to subscribe!

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**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

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Email: Boots@theheartchamberpodcast.com

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Boots Knighton

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Transcript
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Welcome to Open Heart Surgery with Boots, where we explore the

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journey of heart health through the eyes of those who live it every

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day. I'm your host, Boots Knighton. And in season

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five, we're focusing on what it truly means to

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thrive. We'll dive into cutting edge medical advances,

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share powerful stories from both sides of the stethoscope,

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and learn how to be better advocates for our own health.

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From candid conversations with cardiac patients to

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insights from dedicated healthcare professionals, each

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episode brings you closer to understanding the complex world

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of heart health. Whether you're navigating your own cardiac

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journey or supporting someone who is, you're in the right

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place. So let's get to today's story.

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Hello, welcome to Open Heart Surgery with Boots. I

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am your host, Boots Knighton. And today I am bringing

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you my new friend, friend Dawn

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Anderson from Adrian, Minnesota, which

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is the Nutcracker capital of the world.

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And dawn and I just recently met through

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Women Heart, which is a national organization I've

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spoken about prior to this episode and

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previous episodes. And Women Heart is a

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wonderful nonprofit organization that focuses on women with heart

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disease. So I encourage you to check them out. But thanks to

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them, they brought Don and I together and

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we had the best time at the Mayo Clinic at the Science and

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Leadership symposium. So welcome, Dawn. Thank you for being

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here today. Thank you for inviting me. Now

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tell us first, Nutcracker Capital. That is

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quite the distinction. Well, Adrian itself isn't

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exactly the Nutcracker Capital, but the a town 15

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miles from here that I work in and was, well, grew up

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in, La Verne is being designated, or wants

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to, as the Nutcracker capital of the world. A lady

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who is quite elderly had collected

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nutcrackers and she donated them all to the

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Historical society, the society of which she was

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the president. So they accepted them and they

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decided to use that as a, a gimmick to

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attract people to the town. And they are actually right,

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well, this spring building a 65, 70 foot

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tall nutcracker off the interstate to draw people

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in. Wow. Wow. And then there's like Wall

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Drug, which is in the Dakotas, and now the Nutcracker

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Capital. That is so funny. It's

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pretty interesting, that's for sure. And there's definitely

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opinions on both sides about what, whether or not they want the town to

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be called that. But it right now, that's what the

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powers that be are rolling with. So, you know, there are worse things to be

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worried about, things to be

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called 2025. Yes, yes,

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there could be worse distinctions for a hometown that is for sure.

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Yes. Well, and I am just here for

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your accent, and I. I just adore you. You have

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just the brightest spirit. So thanks for coming on and

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sharing your story. And your story is so

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unique, you know, for myself, for those who are just now joining

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this podcast and have just found me, welcome. I'm so glad you're here.

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And if you want to know about my story, you can go back and listen

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to episodes one and two. I have three different

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defects, one which has now been corrected, but Don might

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beat me. And I want you to know that dawn is

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doing great, and that's why I wanted her to. To come on

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today, because you. You are such a beacon of

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hope and inspiration. So if you could just give

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us kind of like the 50,000 foot view of your diagnosis to

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start us off. Sure. I was actually

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41, and I had had four

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children via C section. I had

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had a couple of abdominal surgeries.

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And the spring of 2011, I had to

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go back and look, I was thinking it was in, like, February or March, but

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it was actually sometime in May. I started to feel

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short of breath, and I didn't even realize it at the time because

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sometimes when you're living it, it's so normal that you

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don't realize. So, yeah. So I went to the

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doctor thinking that I had seasonal allergies. I'd

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never had them before, but I thought that must be what it was.

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And. And I went into the primary care clinic, and he put the

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stethoscope on my chest, and his eyes got big. And

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he said. And I said to him, you know, well, I'm here because I. I

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need an inhaler for my. I think I've got seasonal allergies. And he

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said, oh, no, you need a cardiologist.

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And. And that was the impetus that

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started my heart journey. What did he hear?

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What was like, the. The clue? Well, I had

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a rare aortic aneurysm. And we did not know

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it at the time, but it had burst. I was walking around with it.

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And so he heard. And I'd heard sometimes when I was

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young, you know, that sometimes they would hear funny things,

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you know, a murmur here and a murmur there, but nothing ever

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stuck. So what he heard was the blood

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flow definitely not going the right way.

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And so that was May of

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2011. And I underwent a lot of

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tests because what it turned out I had is so rare

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that it took a lot of tests to find it. So that

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was. That's kind of the short version of how my story started.

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Right. So now, what were those tests? Now

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we can go into the longer version because, I mean, it is quite the

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path. Yes, well, all the tests. And

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I actually went. When I went in to meet with the

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thoracic surgeon, he got out this big old thick

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book. It looked like an Encyclopedia

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Britannica from the 70s. And he flipped it open to this page

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and said, this is what you have?

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And I said, have you ever seen this before? Oh, once, way

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back in Texas or something like that. And it was interesting

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because when I went in for my CAT

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scan, which of course, you know, is very common, and anyone with

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heart disease has testing done every year and, you know,

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to check things. So I went in and.

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Or for my sonogram. I guess at some point the

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sonographer's eyes got really big and she

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just kind of said, well, just a minute, I'm going to step

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out. And anyone that's ever had something like that, you know that that's

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a red flag. And she came back in with someone. She said, well, I just

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wanted someone with more experience to help me. And

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I thought, oh, okay. So what they determined I

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had was a sinus of

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Valsalva aneurysm. And I'd been born

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with it and. And no one had known. And at some

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point, and my primary doctor actually called me

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and apologized because I'd been in for regular checkups for different

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things and it had never shown up. And all of a sudden, apparently

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it burst. And the doctors wanted to know, did you have intense

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pain? Did you have. And I said,

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no. So we have no idea when this

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burst, usually common is that you. If you have

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this, you know, you have it your whole life and die and they never know.

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But otherwise it's usually a medical emergency

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for any aneurysm to burst. And. Yeah, yeah. So I

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was walking around with it and that was in June,

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I believe, and I didn't have surgery to correct it until

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July. So it was a couple months of tests

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and ruling this out, and ruling that out. And so that

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was the first diagnosis. And they also determined that I

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had a bicuspid aortic valve. So they didn't

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know whether or not they would have to replace that. So I

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underwent an open heart surgery and they

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repaired the aneurysm and decided that my

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valve was still functioning well, they didn't want to

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replace it at the time. And so that was.

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That was the first thing. And then later

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on, well, that started me on a journey where I would

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have, like, weakness and passing out. And I

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asked the doctors about it and they kept saying, well,

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you know, no, you're all right. And my, my heart rate was in, like

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the 30s and 40s, and I am not an athlete. That's an

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athlete's heart rate. And they kept saying, no, you're fine, as long as you're doing

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fine. And I said, well, you know, I'm not doing fine. Sometimes I get dizzy

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and pass out. And so I think four years

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later, I passed out at work and went to,

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you know, a different doctor who said, you know, oh, you need a pacemaker.

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And I felt so valued then because I had tried, you know,

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I didn't know if it was a pacemaker that I needed, but I had tried

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to get them to acknowledge that a 30

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and 40, you know, heart rate is not what I

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should have. And so then I had the pacemaker

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implanted, and they determined that possibly where

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they put the patch for the aneurysm

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was right near the SA node, which instigates the heart

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rate. They almost wonder if something happened there.

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Okay, but I'm just thinking about how you went four years

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advocating for yourself, and it took passing out at work

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and getting in front of a different medical provider. That drives me crazy

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hearing that. Yep. Yes. And. And, you know, and I actually

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passed out several different times. And they just said. They kind of

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poo pooed it. And. And I just said, you know, well, what happens if,

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you know, if I do this while I'm driving or something? You know,

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Exactly. And. And all I did was. Yeah. When I passed

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out at work, the. That was the second time I made an

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appointment and went right over to my main clinic, but just happened to see a

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different provider. And he's the one that said, no, let's

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get you set up. And I said, thank you. Okay, so then how long

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did it take to get the pacemaker? That didn't take very long at all.

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That's a good. I mean, I can't remember the timeline. I

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mean, that's a. I mean, it's not a huge

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ordeal, but actually, when they placed

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the pacemaker, they discovered another problem with

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my heart. And that is when they discovered that

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I had. And I have to make sure I say this right, because sometimes I

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say it wrong. A persistent left superior vena

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cava. And that means that when they put the

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pacemaker and they generally put it on your left side and where the

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wires go through in your veins, they got to

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my left superior vein, and it couldn't go anymore.

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And so they had to pull the wires back out. And apparently that is. I

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Mean, it functions fine, but it is in

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backwards. So then they had to restart and put

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the pacemaker on the right hand side and go through different

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veins. So that was another surprise. And

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these are all congenital defects. So I've had these since birth.

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And, you know, you just don't know. You don't know what's going

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on inside this human body. Exactly. And at what

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age were you in 2011 when all this was

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discovered? I was 41. Yeah. And see, I was. I

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was 42 when I began my journey. Yep, yep. Yeah. And

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that's just something I really want to drive home today is

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people. It's interesting. I'll get people who will, like, almost make a

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confession to me that, like, my community here and the Tetons,

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like, I don't listen to your podcast. And I'm like, I. That's

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fine. You don't have to. They're like, I'm not a heart patient. And. And I'm

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like, no pressure. I mean, and it's so. It's so sweet that people, like,

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feel like they need to confess to me, as if I am able to even

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notice or tell when people are, you know, specific IP addresses

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or whatever. But. But I do gently

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push back a little, and I say, I did. I thought I was

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fine until I was 42. And all these people are, like,

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binging on, like, murder and all these, like, Dr. Death and

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all these other podcasts, and I'm like, so

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don't you want to be educated on your heart more than murder?

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But, yeah, anyway, and it's interesting that we're

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discussing this on January 29th, because, of course, we're right

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on the cusp of February, which is Heart month,

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and. And one thing that during heart month, and

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as women heart champions, we've learned

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that, you know, education, you just don't

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know when or if it will be

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your turn or your time. So that's something very important

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that men and women have to remember, is

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that you just never know when you might all of a sudden be walking

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the path of heart disease. Right, Exactly. And it

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will hit you like a semi truck. At least

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it did for me. So let's talk. Let's touch on that a little bit,

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if you're willing. The short time I've known you, you're just. You're just

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so full of grace. And you're the classic Midwest,

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Midwestern personality, which I love. You embody the

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movie Fargo as far as Frances McDormand, and I love

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that. But I. I have to know,

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like, did you get upset like, how did you

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cope with this? Like, what was it like for you to learn about all of

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this? I, I think, to be honest with you,

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that it was that I, I didn't, I didn't at all

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grasp the concept of the seriousness of it.

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I, at the time I worked in public health and so

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I would Google all the time. You know, every time I had a test, I'd

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go on my portal and I'd say, well, I wonder what that could mean. And

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may as this, I think until I actually

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had to face the open heart surgery, I did not

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grasp the seriousness of it because I'd had it for so

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long. And what really hit it home

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with me is that because

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of course the aneurysm is very rare, but the

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bicuspid valves are not that uncommon. So

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each of my kids had to be tested to make sure

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that they didn't have it. That was an eye opening

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experience because as a parent it's okay

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if I go through struggles because I know I can handle

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it. But to find out that, well, this might be affecting my

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children that I didn't like, but

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it turned out they all turned out all right. But I did

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in the last few months read that

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children of people that have had

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aneurysms, even though like my kids have all been had

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the testing and found that they don't have

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the valve, when they turn 30, they

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should have another one to determine

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that something hasn't developed, like an aneurysm

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hasn't developed. So now trying

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to tell my adult children, who, you know, may or may not

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want to believe me, that just do a baseline test

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because you don't know, you have a higher rate

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of possibility of developing an

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aneurysm. Yeah, yeah. This is where

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sometimes ignorance is bliss. But at the same time knowledge is power.

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But ignorance, knowledge is power. It's like going back

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and forth. Yes. And then you just want to learn

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all you can about what is going on with your body and

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what you can do to change and to fix

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and to, and to teach

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others so that, that if they're walking the

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same road, that there is hope out there and that

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there's support. And that's one thing with the women heart.

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I'm so glad like you that I found that organization

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because the support and the knowledge is just

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unbelievable. Yeah, it really is. And they, they bring

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in the best and the brightest from like the Mayo Clinic and

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incredible learning. And I had

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Dr. Lara Suarez Pardo on in

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December talking about cardiac psychiatry, which

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was amazing. And I hope to have a Few of the other members that we

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got to meet here in 2025. So with

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your open heart surgery, how was your recovery? My

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recovery actually went really well. I got very

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lucky. And it's kind of interesting because we

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had kind of heard or known that the place that I worked at

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was going to be going through some changes and that several of us may

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be laid off. And while I was in the hospital

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recuperating, my supervisor came and I thought that she

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was there to visit, which I think she was, but

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she also was there to let me know that when I get home, my.

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My. The yellow slip or white slip or whatever, you know, would

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be in the mail. So. Oh, bummer, you know. Yeah,

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yeah. And. And so here I am, you know, and

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so I went back to work earlier, but, I mean, I felt okay. And

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I also worked in health care with a whole,

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you know, I told the doctor that I'm so very safe,

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I'm in a bigger town, I'm with

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all nurses. And I felt good.

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So I went back to work sooner than what they recommended, I

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think after just five weeks instead of the eight to 12 that they

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want, mainly because I knew I was going to be losing my job

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in just a few months and I had a lot of bills

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to pay. So that really. That

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there was more stress because of that and having that

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go on, too. And you don't think that negatively impacted your

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recovery, though, in the long term? I don't.

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I think that something very positive came out of it, actually,

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because one time when I was in. I

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think, I know you've done podcasts about cardiac

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depression, and I think I was in

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cardiac. I was in depression and I didn't realize it. And one time

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when I went in just for one of my. Not to the cardiologist, but to

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my primary care doctor, she just sat me down and said, dawn, think

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about all of what you've been going through.

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And she said, I think it would be beneficial for

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you to start on an antidepressant because you're losing

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your job. You've just undergone major surgery.

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And that was something that I needed, that I

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didn't even realize. I was

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depressed and I did not know it. And that medication has made a

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huge difference in my life. It made me.

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I've told so many people that I'd probably quit taking my

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heart medications before I'd stop taking my

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antidepressant, because I didn't know and I

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wouldn't actually, but I didn't know

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how much better my life was going to be. And

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so it, technically, it actually worked out to my

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benefit because the doctor kind of recognized, you know, you're under

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a lot of stress, Don, and you aren't. You don't realize

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it. Yeah, yeah, yeah.

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That's, that's a couple of times I've heard you say,

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like, you didn't realize how serious it was at first and then you didn't

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realize you were depressed. And I, I bring that

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up because I experience the same thing. And when you're

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in, when you're in this like extreme pressure

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cooker of going from thinking your heart is

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fine to not, it is a five alarm fire

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and you're just trying to figure out what needs to be done

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and what needs to happen next and who to go see for this and that

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and get all your ducks in a row. You don't have time to

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really be aware. You don't have time to

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focus on what's on the peripheral. You are just focused at

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what is right in front of you. Staying alive.

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Staying alive. And that makes that.

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Yeah. And that can affect, you know, well, obviously my mental health, but

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my physical health. I mean, it just.

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The waves just of how it impacts your

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life and your livelihood. It. Yeah, it's. It's something else how

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that can happen. Yeah. So I just want to normalize that for

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people because you're not the first person I've had the pleasure and honor

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of interviewing who has reported the same

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thing. It's, it, it is just so much to manage.

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And I just aired a episode with Keena,

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another heart champion of ours, and

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she said the same thing. She didn't cry until

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like, oh, shoot, what did she say? Four years

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later after her heart surgery. And once, the day

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it hit her, she just cried for a really long time. Like

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all of a sudden her body was just like, okay, it's time. I'm going to

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cry now. I'm going to really feel what I need to feel about

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this whole thing. And what was ironic was the day I

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interviewed her was the day of my four year anniversary

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and. Or it was right around there and I

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was, it was hitting me in a whole new way. My own heart

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journey four years later. And I've been, you know, I've been

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working with the same therapist since 2014 and

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so. And I have huge awareness skills and

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I'm. And I'm still figuring this out and just

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still kind of unpacking the journey. I just want to normalize

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all that. I think it's just

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such an ongoing process. And

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it's interesting when you say how it hits you. I don't know if

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you've done any podcasts on heart survivor guilt

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or if that is something that you've. You know. But I had

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a friend, someone that I know who literally is the

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same exact age as me, we share a birthday,

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and her husband had a heart

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emergency, ended up in the hospital and

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passed away. And I

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suffered what I call cardiac depression.

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I had survivor guilt. That. Why. Why

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him? Why not me? You know, so that was

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another wave that hit me and. And completely out

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of the blue. I was not expecting that, you know, because. And he's

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a good man, a good husband. Why

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him? And why. Why not me?

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And so that is something that I have. I

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definitely struggled with. And that was

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in 2017, when he passed away.

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So that. So six years in. So, yeah,

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survivor guilt. Yeah. I haven't

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recorded an episode on that, and I need to, because one of my

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dearest friends from childhood died of a massive heart attack in her

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sleep at age 48 the day before Thanksgiving

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this last year. And she had two kids, a husband, loving

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community, and I'm just like, why did I get to live? You know? So,

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yes, I. Yes, it is a thing. It is absolutely

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a thing. And I think that's just when we're facing our own

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humanity, and that's when the questions are bigger than our pay

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grade. Yes, you're right. And we. We will never

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know, you know, we will never know why. But it's

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interesting how something like that that you don't even

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think of can just hit you so

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strongly out of the blue. Oh, yeah. Yeah, it's a thing.

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And any emotion that comes up for us is valid, and it's

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just our psyche just processing. And I

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think the greatest gift we can give ourselves is grace, mind, body,

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spirit. Yes. And not just us, but others, too.

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Yes, I'm still working on that, Dawn. I'm still working on that.

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Any parting advice for those coming

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after you? And I like people who. A lot of people listen to this

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podcast that are just now starting out on their journeys. And for those

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just starting out, what. What do you want to tell them?

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Listen to your body and don't be afraid to ask,

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don't be afraid to question, and don't be afraid to advocate for

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yourself that it's very important because you, you

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know, you're normal more than anyone

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else. So if something doesn't feel right to you, say

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that. Stand up and yell. I need to be listened to. And I

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know you've talked about that multiple times, Boots,

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but. And also, don't be afraid to reach out. You know, get

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education, get support. There's so many people out there that are

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living with heart disease

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and the support, you might not realize it, but it

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is out there. And there's people that are willing to

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help you walk the journey. Women, heart champions,

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volunteers, educate yourself

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and ask questions. Yeah. And it's

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amazing to me, dawn, how many people are so anxious to help

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that just really want to make it better for

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those coming after them. And I think of you and all the other

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guests that have been willing to be vulnerable and share your stories

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on this podcast. And that is a way of helping those.

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So thank you for your willingness today. Well, that is no problem.

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You know, I am no different than anyone else. So you just,

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you know, you just don't know. And we need the heart

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to love, to live. So take care of your heart and don't

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be afraid to ask someone and share it

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with someone. I can't think of wiser words to end with. So

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thank you, Dawn Anderson, coming at us from near

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the Nutcracker Capital. Yes,

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you'll have to look it up sometime. La Verne, Minnesota, the Nutcracker

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capital of the world. And thank you again, listeners,

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listeners, for being here today for supporting this podcast.

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If you would consider there are two different ways that you can

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financially show your support. You can join our Patreon

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community, which I'll put in the show notes, and

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also you can buy me a coffee. That is a website

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where you literally can, like, go to buy me a coffee and throw

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a little bit of support my way. It really does make a difference.

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This is not free. I'm doing this from the goodness

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of my heart. But it is a lot to carry financially,

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so your support matters. And don't forget to

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subscribe. I don't want you to miss another episode of Open heart

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surgery with Boots. Please be sure to come back for another

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episode. And until then, remember that I love you,

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you matter, and your heart is your best friend. Amen.

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About the Podcast

Open Heart Surgery with Boots
Giving voice to heart patients around the world.
Giving voice and providing hope to heart patients around the world. Let's complete the healing picture and so you can thrive post heart surgery.
Hi, my name is Boots Knighton, and I am an open-heart surgery patient in Victor, Idaho. Diagnosed with three different congenital heart defects at 42 years old, my life changed in an instant. In 2023, I launched this podcast because it was what I needed when I was facing heart surgery. I interview hearts of all kinds and as well as health care providers. You are the CEOs of your own health, and this podcast will teach how to advocate for your heart so you can live your best life.